I was talking to Dr. Stuart LeGrice of the National Cancer Institute when all of a sudden he said
Keep the emails and phone calls and faxes coming in
On the heels of the September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let our federal health agencies know we are expecting big changes. The more they hear from us now, the more they’ll listen to us next time we meet. Our “Time for Action” campaign is advocacy made easy — yet it will have a huge impact. We ask patients, their families and friends to email, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question every day, starting today.
(Please click “Add Cc” in your email and put Bob Millers email address – firstname.lastname@example.org- in the Cc: box of your email – so he can keep track of how many emails are sent. )
Dear Directors Collins and Fauci,
What have you done for ME/CFS today? Patients and their families are waiting.
Name: John Doe (or John)
Location: Miami, FL
Time: Sick 12 years
For more Inspiration Check Out Our “How To” video:
Organizers: Robert Miller, Rivka Solomon, Charlotte von Salis