“CFS Patients Address the CDC” – Striking New Video

August 4, 2010

Posted by Cort Johnson

Check out Dreambirdies striking new video from the Phoenix Rising Forums


{ 4 comments… read them below or add one }

Pat Mayer August 5, 2010 at 8:09 am

Thank you, Cort. This is such and beautiful, striking and all-too-real video. Now the trick is to get it to people who can do something about it.
Your tireless efforts are always so appreciated.


Marcie Myers August 5, 2010 at 2:43 pm

I had a dream. Long ago, before my mind and body failed me. Before I had to walk/crawl out of the clinic and the almost 1000 inmates whose care was my responsibility. Before my ex-husband deliberately tortured my soul as his way of getting rid of me. Before my now grown daughter would tell me that I could do better…. if only I’d try. Before I was denied by all who I went to… begging for help, crying, exhausted, helpless to change what was…. I dreamed that I could fly like Superman in the comic books of my youth. And bring down evil. And uphold what was good and right. God had given me a great intellect and a huge heart and compassion enough for everyone in need. I never doubted my duty to care for others. It was my destiny, you see, and I felt that a great honor had been bestowed upon me. Now I find myself sick and alone and forgotten. And in need of the Superman of my childhood dreams. Because I’ve been bested, not by kryptonite, not by CMV and EBV and HHV6 and XMRV and Candida and this nightmare illness called Chronic Fatigue Syndrome. No. I’ve been bested by my own country, the land of the free and home of the brave. By the CDC, NIH, HHS, and physicians turning their collective heads from me and millions more like me. Helplessly hoping, trying to stand this test of time for over 16 years now, just staying alive, keeping the faith as my mind and body slip from beneath me, my wings too frayed to fly for I am as yet not an Angel. I cry out to the Center for Desperate Citizens (CDC), and I beg loudly as possible please, please, Help Human Suffering (HHS). Where are you now? When I need you the most? Because I still have that dream. Even as I lay here. Alone.


Vivian August 5, 2010 at 3:32 pm

I have watched my best friend loose her world, one moment at a time. I have myself told her to “try” and think better thoughts. I have myself, tried to teach her about Jesus and his great love, thinking that would make her better. I have, after being exhausted from her mental lapses, refused to answer the phone……for all this, please forgive me Marci…and thank you for always hanging in there…even in the darkest of moments….You are still and forever will be my hero…


Allyson August 5, 2010 at 4:08 pm

Marcie Myers


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