Posted by Cort Johnson Website Down (Again…sigh) – The website has been down for at least a week but hopefully we’re back up for good and in a new format. The website will changing quite a bit over time as we slowly create a new version of Phoenix Rising. Fighting for A Cause Dr. Mikovits and the search for XMRV was
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Phoenix Rising Joins Coalition of Non-profit ME/CFS Organizations to Produce Change
Posted by Cort Johnson Phoenix Rising is proud to join the Coalition 4 ME/CFS. Every member of the Phoenix Rising Board of Directors has had ME/CFS for over ten years and we are all personally aware of its costs. A recent letter one of our Board Members, Pat Sonnett, wrote to Amy Dockser Marcus of the Wall Street Journal, summed
ContinueStraight Talk From Dr. Montoya: the Stanford Hospital CFS Lecture (March 2011)
Posted by Cort Johnson Dr. Montoya at Stanford Hospital on CFS March, 2011This definitely wasn’t an ‘get acquainted with CFS’ talk. There was no boring scholarly introduction to CFS (“Chronic fatigue syndrome effects blah, blah, blah….has x number of symptoms….blah, blah…..)…Dr. Montoya was clearly trying to wake people up. Calling ME/CFS one of the most ‘mis-perceived’ illnesses in medicine, Montoya
Continue‘Fighting For A Cause’: The Search For XMRV Featuring Dr. Mikovits
Posted by Cort Johnson Nature, (the second most read Science Journal in the world, published a long article on the search for XMRV. I think it’s pretty even handed. The article clearly outlines Dr. Mikovits commitment to the patients (and their commitment to her), gives us some idea why Dr. Peterson left, reviews the contamination issues, tells us that a
Continue[Phoenix Rising Newsletter] Comedown for XMRV at CROI/Hope for Ampligen/CFS Hits the Big Time…
Posted by Cort Johnson Welcome to the first Phoenix Rising newsletter with our new newsletter using the new Amazon ‘Simple’ Mail Service! CROI! — XMRV showed up in spades in the first major Retrovirology conference of the year, CROI (Conference on Retroviruses and Opportunistic Infections), occurring in Boston. The big news came from a study which suggested XMRV may have
ContinueCFS Hits Big Time "War on Mystery Disease" on Front Page Wall Street Journal
Posted by Cort Johnson Discuss this article on the forums I was sitting in Starbucks browsing the front page of the Wall Street Journal – and saw something about “War on Mystery Disease”….and there’s no way…… and then gulped. Yes, chronic fatigue syndrome was the Front Page of the most popular and influential newspaper in the United States. That’s right
ContinueComedown at CROI: XMRV and CFS at the Conference on Retroviruses and Opportunistic Infections
Posted by Cort Johnson A New Center – Much research and discussion now is not centered around XMRV but around a prostate cancer cell line called 22RV1. More than anything else this cell line that is what is causing problems for XMRV. The 22RV1 cell line was created in 1999 in response to a need to study prostate cancer –
ContinueXMRV Buzz! The CFS/XMRV News Page
Posted by Cort Johnson March 6th The WPI’s response to CROI was “It is interesting that infectious XMRV is still found only in human cells and not in mouse cells or mice. In addition, these data have little to say about XMRV infection in humans.” In an email Dr. Mikovits stated “There is still not one piece of evidence of
ContinueHope for Ampligen-Breaking News!
Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord I’ve been sitting on this story for a couple months now at the personal request of a couple physicians who were “on the fence” but I can now share with those who are interested in getting Ampligen, the future might be a little brighter. As you
ContinueCFS Blogger Shows Up on the Biggest Blog Platform of All: the Huffington Post
Posted by Cort Johnson Discuss this article on the forums John Falk is a journalist and author who came down with ME/CFS a couple of years ago after getting an infection while traveling outside of the country. He’s been out of commission for a couple of years and has now shown up at the Huffington Post writing openly about CFS.
ContinueGuilty!…. By Association? Taking Our Measure
Posted by Cort Johnson Dr. Klimas was raked over the coals recently for being a co-author of a study on stress management that brought symptomatic relief to some people with CFS. In the upset of the moment the rest of Dr. Klimas’s work – her uncovering of the central immune dysfunction in ME/CFS (NK cell dysfunction), her numerous research papers,
ContinueReport – CFS Will Be on CBS National News Jan 23rd with Katie Couric and Nancy Klimas
Posted by Cort Johnson CBS News was in Miami yesterday filming the Miami Coral Gables CFIDS Group meeting with Dr. Klimas. According to reports Dr. Klimas met with them after the meeting to do an interview about the PACE trial and Dr. Natelson’s new study validating a previous study finding abnormal proteins in the spinal fluid of ME/CFS patients indicating
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