Posted by Cort Johnson Discuss this article on the forums Written by Victoria (I suspect you are all feeling a little disgruntled, fed up with Chronic illness & pain, & need a good laugh) I am starting a competition. Whoever posts the funniest Joke of the Month of June, wins the $50 credit sitting in my PayPal account (they gave
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$250 000 dollar for P.A.N.D.O.R.A. NEW SHORTER VIDEO, NEW CAMPAIGN.
Posted by Cort Johnson By simply voting, P.A.N.D.O.R.A. can win up to $250 000 and Pandora can use it – they want to create WPI-like Neuroendocrineimmune Treatment/Research/Educational Center in New Jersey (and then in Florida). Watch the instructional video in full size by clicking on read more: PANDORA is in the top 200 and wins $20 000 at this point
Continue‘It’s All Academic’: How the Medical Research System Rewards Researchers Not Patients
Posted by Cort Johnson The NIH invests over $31.2* billion annually in medical research for the American people. NIH website There’s something fishy with the way the medical system works. Take this simple fact; from 1996-1999 the FDA approved 157 new drugs. From 2006 to 2009, not long after the NIH’s budget had more than doubled..the FDA approved only 74
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Posted by Cort Johnson Discuss this article on the forums As most of you know the Phoenix Rising administration and moderation team is rather small at the moment and we’re always looking for new talents and new viewpoints. When joining the PR team there are no must’s (other than putting some time in) – that means that you are free
ContinueEqual Pay/Equal Power/Equal….Research Funding – the ‘Campaign to End Pain in Women’ Begins
Posted by Cort Johnson The Problem – We know CFS patients can’t get any respect. We have solid data showing there are high rates of CFS prevalence (@1,000,000 people in the US), that CFS causes high economic losses (up to 20 billion dollar a year), and that it causes high rates of disability. In short we have data that demonstrates
ContinueThe Ampligen Supremacy
Discuss this article on the forums Written by Kelvin Lord My favorite line in the “Bourne” trilogy is given by The Professor. He appears briefly in the first installment, but it is in the second film, the Bourne Conspiracy, that Clive Owen utters the quintessential phrase of the movie. After dueling with fellow agent Jason Bourne in the countryside and
ContinueInvest in ME Conference Overview by the Patient Advocate
Posted by Cort Johnson The Patient Advocate regularly provides overviews of ME/CFS conferences and events. Here he provides an at times hard-hitting take on the latest Invest in ME Conference. Thanks to the PA for his years of communicating with the ME/CFS Community. Check out his excellent blog here. Here is my report from the Invest in ME conference in
ContinueLearning CFS: the Lerner Antiviral Treatment Trial Succeeds
Posted by Cort Johnson Discuss this article on the forums Quote: Our Clinic has treated hundreds of people who are now living normal lives Background: Dr. Lerner had quite a career before CFS. A check of his research record revealed over five decades of infectious disease work focusing on Coxsackie virus, herpes simplex virus, pseudomonas, interferon, Staphylococcus, Mycoplasma, enteroviruses, myocarditis,
ContinueXMRV Is…..Is……Is…..There!
Posted by Cort Johnson XMRV is…is…..is….There! – Yes, someone actually found XMRV. (gasp!). They weren’t looking for it in the blood or in the prostate tissue or in CFS patients and no, it wasn’t a US Lab that found it, it was a German lab remarkably enough but after months of no positive results it was remarkable finding…XMRV appears to
ContinueDr. Coffin on XMRV
Posted by Cort Johnson The crew at the Phoenix Rising Forums has been busy. Rrrr – went so far as to snag Dr. Coffin, one at the top retrovirologists in the country, and ask him some questions about XMRV. Tracking XMRV Down – What is he and Tufts University doing on XRMV? – Dr. Coffin is looking far, and has
ContinueTo blue skies…and far away places.
Discuss this article on the forums Written by The Spitfire [attach]2558[/attach] I thought I would follow up, with where things are at, after such a downward spiral last week. Thank you to all who reached out, private messaged me and so forth. I know it may seem inappropriate to talk about menstrual cycles since there are so many men on
ContinueBorn to Run: NJCFSA Rocks New Jersey
Posted by Cort Johnson Discuss this article on the forums Most states don’t have a statewide CFS organization let alone one that puts on conferences, writes comprehensive CFS manuals, provides high school and college scholarships, advises school on pediatric issues and more. In short, the ME/CFS patients in New Jersey have somehow managed to create a viable, proactive organization that
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