Covering It Live! Phoenix Rising Covers the Federal Advisory Committee Meeting

Posted by Cort Johnson The federal advisory committee on chronic fatigue syndrome (CFSAC) meets twice a year to propose recommendations and interview and prod  federal officials to do more to meet the enormous needs of the chronic fatigue syndrome community. Join Phoenix Rising as we cover the two-day event (June 13th, 14th 9am-5pm EST) live with commentary and the opportunity

Continue

The 20 Years Ago Today Series V: Still the ‘Yuppie Flu’

Posted by Cort Johnson An Institute for all Americans…. Or Just Some? The Department of Health and Human Services 2013 Budget proposal doesn’t mince words about whose health the Department, which oversees the NIH and CDC, is charged with protecting…. This Budget request represents the Administration’s priorities for guiding the Department of Health and Human Services (HHS) to enhance the

Continue

The 20 Years Ago Today Series II: the ME/CFS Survey!

Posted by Cort Johnson “It was twenty years ago today…” Check out our “20 Years Ago Today” survey celebrating the 20th Anniversary of International Awareness day. A wide-ranging (would you take Rituximab if you could get it for free?), sometimes quirky, (what was the most you ever spent on ME/CFS?), sometimes wishful (if you had $100 million dollars to spend

Continue