Posted by Cort Johnson It’s hard to beat a three for one deal – you put a dollar in for ME/CFS research and the McGrath Family Foundation will match it with three more dollars. It’s particularly hard to ignore when it’s going to a research team with a proven record of success. The CAA’s research team is nothing if not
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IACFS/ME Ottawa CFS Conference Reports: XMRV II: the Coffin/Mikovits Debate, pMLV’s Strike Out …
Posted by Cort Johnson In Part II of the XMRV section of the conference we look at the Coffin/Mikovits presentations, Hanson’s update on her XMRV work and look at the recent XMRV research findings. The pMLVs Strike Out – Hanson Disavows Former Results “The sensitivity of the PCR assays used requires extreme caution in interpreting results Dr. Maureen Hanson” Background
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IACFS/ME Ottawa CFS Conference Reports: Pt 1- XMRV’s Big Test: The Blood Working Group Study
Posted by Cort Johnson Pt. IA: XMRV: the Big Test – the Blood Working Study (Taken From the Ottawa Conference/CFIDS Association Webinar) The Blood Working Group was a large group (25) made of federal officials from various agencies (CDC, NIH, FDA), the Red Cross, several laboratories including the WP, several Universities and put together just a month after the XMRV
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Researcher Confesses: Implicates Dr. Mikovit in Theft of Materials from WPI
Posted by Cort Johnson Dr. Judy Mikovits has had a difficult couple of months. First the BWG study indicated the tests she developed for XMRV were not valid, then evidence of contamination resulted in a partial retraction of the original Science paper, then she was accused of doctoring a photo at a conference and in the original Science paper prompting
ContinueIn or Out? Four Organizations on the Precipice in the Last Hours of the Chase Contest
Posted by Cort Johnson We started out with seven CFS non-profits in the running for $175,000 in the Chase Community Giving Contest. We knew the contest was going to get really volatile in the last couple of days and it has with four organizations dropping like rocks. With only 22 hours left in the contest only three organizations appear assured
ContinueLast Chance for the RMCFA on the Last Day of the Chase Contest….
Posted by Cort Johnson The RMCFA is one of six CFS organizations in the running for from 25K in the Chase Community Giving Contest running until Aug 22nd. Chances are,though, that after being in contention for 2 weeks, on the last day of being in the Chase Community Giving contest, the RMCFA will drop out of the top 100 and come up
ContinueBy the Skin of their Teeth! Spotlight On the NJCFSA and the Enterovirus Foundation in the Chase …
Posted by Cort Johnson Discuss this article on the forums The Chase Community Giving Contest is virtually the only way for penny-poor CFS non-profits to come up with easy cash. With four days left in the contest two non-profits – the New Jersey CFS Association (#93) and the Enterovirus Foundation (#81) – are hanging on by the skin of their
ContinueBig Bucks For CFS: Spotlight on CFS Knowledge Center and IACFS/ME
Posted by Cort Johnson Only Four days left for Chase Community Giving and two of our most important CFS non-profits are in the running. Check out why your vote for these organizations will make a difference for ME/CFS. CFS Knowledge Center The CFSKnowledgeCenter is actually two sites: a thriving Community Center with blogs, research surveys and CFS support groups and
ContinueIs Chronic Fatigue Syndrome (ME/CFS) an Autoimmune Disorder?
Posted by Cort Johnson Could chronic fatigue syndrome be an autoimmune disorder? The Fluge/Mella Rituximab study was effective in at least temporarily reducing the symptoms of about 60% of the chronic fatigue syndrome patients in the study – a fact that no doubt shocked many who considered CFS purely a neuropsychiatric disorder. Rituximab started out as a chemotherapy drug but
ContinueWanda Jones Talks/ CFSAC Disappoints/Agenda/Audio Call-In Set
Posted by Cort Johnson Discuss this article on the forums Wanda Jones made a difference for the CFS Community at the federal advisory committee for CFS (CFSAC). The NIH liason (FDO) to the committee Wanda was right there in the middle of things when XMRV came on the scene. Sometimes fiery, sometimes surprisingly funny, Wanda was the rock the CFSAC
ContinueTwo Weeks for $250,000 (or more) for CFS: Chase Community Giving Contest for Small Non-Profits …
Posted by Cort Johnson $250,000 or More for the ME/CFS Community????? Is that even possible? $250,000 may be more than all the smaller non-profits ever – put together – spent in their existence – but it is possible and its happening NOW. Chase Community Giving is at it again. In the first round – for larger non-profits- the ME/CFS Community
ContinueCFSAC PROTEST AGAINST FEDERAL NEGLECT OF ME/CFS ON TAP FOR NOV 8th.
Posted by Cort Johnson Discuss this article on the forums Somethings gotta be done; money, lots of it was spent on XMRV but the budget for the rest of CFS is still in the tank and now we are faced with what we worried about what might happen if XMRV didn’t turn out; the rest of the medical community going
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