Posted by Cort Johnson The 10 year review of the CDC’s CFS Research program is winding up. They’ve taken an internal look and an external look at the program and an un-solicited outside look . They liked the external look – it glossed over many of the more substantial problems with the program – and were likely horrified at the
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Advocacy issues in chronic fatigue syndrome (ME/CFS)
The Best, Worst, Biggest, Least…2008 in a Nutshell
Posted by Cort Johnson Most Remarkable Achievement (of the Decade) – As funding at the NIH and CDC plummets a major research/treatment center, the Whittemore-Peterson Neuro-Immune Institute – begins to rise out of the deserts of Nevada just over the hill from Incline Village. The WPI is a testament to the tenacious commitment of three people; Annette and Harvey Whittemore
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‘The More You Know the More You’ll Want to Give’: the first Enteroviral Foundation Opens
Posted by Cort Johnson I first met Lisa Faust at the Symposium on Viruses in 2008. She was at a table with a group of women all of whom were battling a similar sounding illness. They were definitely the acute onset infectious disease subset. My mouth dropped as I listened to their stories; some were on complete disability, others had
ContinueThe NIH On the Clock Pt. III: It’s Raining Money
Posted by Cort Johnson That’s right – in the midst of the greatest economic contraction since the depression the NIH has, all of sudden, found itself in the greatest single expansion in its history. How and why demonstrates how much influence one Senator can have. Desperate to get Arlen Spectors vote on the stimulus package, the Obama administion acceded to
ContinueOn the Clock Pt I: the NIH and ME/CFS (chronic fatigue syndrome)
Posted by Cort Johnson We know the ME/CFS research program at the CDC is in big trouble but what about its cousin at the NIH? Three years ago the CFIDS Association of America was praising the CDC’s chronic fatigue syndrome program and slamming – in a federal document – the horrible performance of the NIH’s ME/CFS program. The only thing
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