by Jody Smith I have been self-isolating for over two weeks now. Not because of COVID-19. At least, not at first. Like many of you, I spend a great deal of time in my house because of ME/CFS. I was housebound due to a resurgence of ME/CFS symptoms since the beginning of March. And like many of you, I haveContinue
Category: Phoenix Rising
Looking Ahead to a New Year With ME/CFS
by Jody Smith Hey, it’s the beginning of a new year. And 2020 has a nice fresh ring to it. This time of year are you thinking about the future? I’m not talking about New Year Resolutions. I ditched those years ago. Me, I have a hard time looking to the future. When it comes to scheduling and planning andContinue
Living With ME/CFS in the Holiday Season: Year After Year
by Jody Smith This year marks my twenty-eighth holiday season fractured by ME/CFS. Some years have been better, some worse. All of them have been thrown off kilter in one form or another for me and my family. My first Christmas marred by ME/CFS was in 1992. My husband had had fibromyalgia for four years. That spring I’d had aContinue
When the ‘Holiday Season’ Is No Holiday at all for Those With ME/CFS
by Jody Smith The holiday season just doesn’t live up to the hype, especially for the chronically ill and their caregivers. You people with ME/CFS know all too well what I’m talking about. I am one of the lucky ones, and I know it. My symptoms are generally mild and while they keep my life small, I’m able to doContinue
Julie Rehmeyer’s ‘Through the Shadowlands’
Writer Never Give Up talks about Julie Rehmeyer’s new book “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand” and shares an interview with Julie … A riveting new book by science journalist, patient and ME/CFS champion, Julie Rehmeyer, has just hit the stands. “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’tContinue
Phoenix Rising Adds Two New Board Members
Mark Berry introduces the new President of Phoenix Rising, Dr. Gary Solomon, and welcomes Professor Jonathan Edwards to the Phoenix Rising Board of Directors. On behalf of the Phoenix Rising Board of Directors, I’m delighted to announce the appointment of two new board members. Regrettably, I also have to say goodbye to one. Karen Luoto has stepped down as President.Continue
Phoenix Rising 2013 Annual Report
Mark Berry, Acting CEO of Phoenix Rising, presents our Annual Report for 2013 Phoenix Rising’s board of directors and volunteers were faced with a daunting set of challenges at the start of 2013, following the departure of our founder Cort Johnson. With only a skeleton staff of volunteers, the tasks that lay ahead of us were to stabilize the organization’sContinue
Phoenix Writing: join our team of writers and editors!
by the Phoenix Rising Content Team Do you ever read a Phoenix Rising article and think, ‘I could write something like that’? Or do you fancy helping articles through the publication process, onto the front page and beyond? Then maybe you’d like to join our Content Team of writers and editors and help produce articles that will be seen here,Continue
New Research to Explore Role of Online Peer Support on Phoenix Rising Forums
Mark Berry introduces Dr Neil Coulson and Anna Maddison from the University of Nottingham, and their new 2-part research project with Phoenix Rising The most rewarding part of my work with Phoenix Rising is meeting people who tell me that treatment information they have found on our forums has dramatically changed their lives and their health, or that the forumsContinue
Divert the Mighty Amazon and Help Support Phoenix Rising – for Free!
by Sasha Amazon.com, Inc.: it’s huge! It’s the biggest online retailer in the world and, weirdly, we can easily divert some of its mighty river of money into Phoenix Rising’s coffers. For free! Free, my friends! First I’m going to tell you how to do it and then I’m going to tell you why. How to make Amazon give PhoenixContinue
Win $5,000 for Phoenix Rising and PANDORA in One-Time Facebook Vote!
by Sasha After pushing so hard for so many of our organizations in these online voting contests, it’s refreshing to ask you to vote for us this time! Both Phoenix Rising and PANDORA are in the Bogs (lovely name) Footwear contest in which the top two charities will each win $2,500 (£1,700, €1,900), and we can all vote for both.Continue
Phoenix Rising: Worth as much as Vogue?
by Sasha The internet! Full of lovely free stuff. Until recently, we expected to get our news, expert advice, gossip – pretty much everything on the web – without paying. Some content providers write for fun and don’t seek payment, but others need an income from their work. They get that via click-through advertising or because their content is advertisingContinue