Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath shares results from a long-term follow-up study from Haukeland University Hospital in Norway … “When will this end?” It’s a question that most ME/CFS patients have probably asked themselves and their doctor many times. I certainly have. Yet there is astonishingly little hard data on recovery rates from this illness or
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Jody Smith has been taken by surprise by the value of having a dog when dealing with ME/CFS … There’s been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They’ve been fairly indifferent to my presence and
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Jody Smith continues her review of Nova’s Patient Conference for Dr Klimas with a look at three patients who have improved significantly. “No one has ever taught me more about what to do than my patients.” So said Dr. Nancy Klimas at the Patient Conference hosted by Nova Southeastern University on January 26, 2013. This has to be one of
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Posted by Cort Johnson As part of a treatment overview Phoenix Rising is documenting what has worked for individuals who have gotten well or nearly well. While recovery is not common it does happen and we want to find out how. If you’ve recovered or have mostly recovered please give us your stories. If you know someone who’s recovered please
ContinuePosted by Cort Johnson The Recovery/Recovering Stories : ME/CFS is heterogeneous disorder with many different subsets. None of the treatments in the Recovery/Recovering stories will fit all or even most patients. In May of last year I received an e-mail from Berit Frivold a chronic fatigue syndrome (ME/CFS) patient who’d been ill for 13 years. Like many people she’d tried
ContinuePosted by Cort Johnson A Recovering/Recovering Story – The wide range of recovering stories demonstrate how varied the ME/CFS population is; each story will only apply to a subset of people with ME/CFS (Vistide is a very strong drug that Dr. Peterson has been using in select patients for several years now. HVS has been telling about his experiences with
ContinuePosted by Cort Johnson The Recovery/Recovering Stories #4 Janet’s Story What really attracted me to Janet’s story was how multi-dimensional it was. She’s had both severe endocrine dysfunction and severe pathogen problems. Both high doses of antivirals and alternative ‘behavioral-like’ therapies like meditation and her own quest for (spiritual) wholeness have been important for her. She’s still quite ill but
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Posted by Cort Johnson EVENTS Biggest Event – what else? XMRV takes the spotlight as no research finding has before, retrovirologists across the world clamor for samples, worry mounts about a tainted blood supply, Hilary Johnson blows into the New York Times Op Ed section, and patients gasp and cross their fingers in hopes that it will all work out. See XMRV
ContinuePosted by Cort Johnson The Recovery/Recovering Stories – stories from ME/CFS patients who have experienced significant recoveries. The diversity of recovery stories indicates that ME/CFS is indeed a very heterogeneous disorder; any story may or may not apply to a given individual. Martha Kilcoyne detailed how she fully recovered from a severe case of chronic fatigue syndrome in ‘Defeat Chronic
ContinueA Guest Blog From Lisa Johnson (Lisa Johnson, a former marathon runner, first came down with chronic fatigue syndrome (ME/CFS) in 2003. She temporaily recovered and returned to her ‘hare-like’ existence only to suffer a severe relapse in 2004. She has been unable to work since then). Aesop’s fables date from the 6th century BC. He published in excess of
ContinuePosted by Cort Johnson “PLEASE REPOST PUBLICLY” In a recent post, (marked “Please do not repost publicly”) Jodi Bassett noted her ‘outrage’ at Mike’s story of his recovery and declared herself ‘absolutely disgusted’ by Mike’s attempt to spread it. After only the most superficial acquaintance with the treatment procedures she declared it ‘harmful’ We were rather astonished. We’d offered the
ContinuePosted by Cort Johnson Click Here for Part I/ Part II When we last left ‘patient X’ he was in a semi-coherent state and had trouble tolerating even mild stimuli without pain. Emaciated and in pain he had essentially resigned himself to dying. Then, remarkably enough, he heard of doctor in his own area whom, he was told, was successfully
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