Posted by Cort Johnson Discuss this article on the forums The regular season is over – it’s playoff time for the Chase Community Giving Contest for large non-profits…..time to win some BIG MONEY for CFS research. This is a unique opportunity. Increasing govt funding for ME/CFS has been agonizingly difficult given the negative attitudes towards ME/CFS and it’s pretty darn
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People With ME/CFS Protest in Front of Department of Health and Human Services Building
Posted by Cort Johnson Discuss this article on the forums ME/CFS Demo May 10, 2011 — Dept of Health and Human Services, Washington DC Contact: Rivka (at) ThatTakesOvaries (dot) org On May 10, 2011, 6 individuals with ME/CFS, each sick and disabled from 9 to 21 years, demonstrated in front of the U.S. Department of Health and Human Services (HHS),
ContinueM.A.D in May: the Twelve Days Campaign III: the May Awareness Campaigns Day
Posted by Cort Johnson Discuss this article on the forums Phoenix Rising, of course, is not the only group proposing special May Advocacy actions. Both the WPI (ANIDA) and RESCIND are engaging in May Actions. ANIDA – The WPI is engaged in a Month of May Awareness Campaign in its beautiful website and Facebook page to build a network of
ContinueM.A.D in May: the 12 Days of May ME/CFS Advocacy Project: Day II – Children’s Day
Posted by Cort Johnson Discuss this article on the forums Children are the most unfortunate recipients of ME/CFS. For many years they were largely ignored but the last couple of years have seen a small spurt in studies exploring the costs and course of the illness in adolescents and children with CFS. While prevalence rates are still extremely sketchy a
ContinueWho is Dr. Elizabeth Unger?
Posted by Cort Johnson Discuss this article on the forums Dr. Elizabeth Unger, the first new CDC CFS Research Chief in over ten years, has replaced Dr. William Reeves – a forceful and controversial figure who put his own initimable stamp on the CFS research program. The ME/CFS community certainly didn’t want someone from within the CDC to emerge as
ContinueThe Big Chase: an extra $525 000 for WPI and/or CAA? It’s up to you.
Posted by Cort Johnson Discuss this article on the forums Help win WPI and/or the CAA $525.000 by voting through Facebook: Simple steps 1. Login to your Facebook account. (Facebook acount is required) 2. From your Facebook page, go to Chase Giving Community page by clicking on the link shown here: https://www.facebook.com/ChaseCommunityGiving 3. “Like” the Chase Giving Community by clicking
ContinueGordon Broderick on ME/CFS: the PANDORA Interview
Posted by Cort Johnson Discuss this article on the forums For a fuller picture of Gordon Broderick and the work he’s doing check out this 2009 Pandora Interview. He explains how he was introduced to the field by Dr. Vernon, his dismay at the level of disability found in ME/CFS and his current work. Intriguingly he’s talking about the work,
ContinueBad Wiring? State of the Knowledge Workshop III: Systems Biology
Posted by Cort Johnson Discuss this article on the forums Stating that there’s been a ‘major revolution in science… brought about by technological advances that have allowed us to look at data generated in the lab in a different way” Dr. Basil Aldadah kicked off the Systems Biology session. These studies tend to use sophisticated analytical techniques to look at
ContinueChase Community Giving Contest Is Back!
Posted by Cort Johnson Discuss this article on the forums Chase Community Giving is at it again. This time they have expanded their Facebook contest to include a round of larger non-profits with have annual operating expenses from 1-5 million dollars. That would includes two ME/CFS organizations in the US; the Whittemore Peterson Institute and the CFIDS Association of America.
ContinueXMRV at the NIH State Of Knowledge Workshop (SOK): The Mikovits –Coffin Debate
Posted by Cort Johnson Discuss this article on the forums It wasn’t surprising at all to see things get heated with Dr. Coffin and Dr. Mikovits both up at bat at the State of Knowledge Workshop. The moderator, Dr. Alter, handled his job with humor and flair. Stating that he was no King Solomon and was certainly unable to determine
Continue(Sometimes Live) NIH State of Knowledge Workshop Coverage
Posted by Cort Johnson Discuss this article on the forums We’re going to try something new, live coverage of the workshop via our community. Since this is last minute, we need volunteers to help cover the event. Let us know if you’d like to help (or think that this is a good idea) with a reply. You can watch the
ContinueMajor Research Funding Opportunity from the CFIDS Association
Posted by Cort Johnson The CAA released the first funding opportunity for ME/CFS researchers in three years; $600,000 in grant money to go to approximately six pilot studies to explore the physiological basis of ME/CFS. The CFIDS Association has had some success in turning it pilot studies into major NIH grants with three of its researchers (Dr. Shungu, Dr. Huber
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