MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London. The 12th Invest in ME International ME Conference (IIMEC12) was held at One Great George Street on Friday June 2nd, 2017. You can view the full conference agenda (with photos and biographies of the speakers) here and the
Continue
Phoenix Rising is delighted to support the demands being made in the ME/CFS community’s first-ever global day of protest … Campaign platform #MEAction is organising a global day of protest for ME and CFS, with a campaign called “Millions Missing,” reflecting the millions of patients “missing from their careers, schools, social lives and families,” the millions of dollars “missing from
Continue
Clark Ellis brings us Part 1 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community … The Institute of Medicine recently published its report into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). One of the committee members, Dr. Lucinda Bateman, graciously agreed to answer questions submitted by members of the patient community. Questions were submitted on the Phoenix Rising forum
Continue
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes of the P2P and IOM. In yesterday’s piece, Clark Ellis critiqued and praised elements in
Continue
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we’ve all been saddled with … If there is one thing that is sure to get ME/CFS sufferers riled up, it is the name of our disease. The very fact that two names are attached to each other, janus-like, almost as if mocking one another seems emblematic
ContinuePosted by Cort Johnson Just M.E. “The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We examine ME’s role in this disorder throughout the month. All articles,
Continue