Forum member RivkaRivka extends an invitation to members of the ME/CFS, Lyme and MCS communities to join together in a teleconference to say “Thank you; We love you; Goodbye” to Rich Van Konynenburg. All are invited to the ME/CFS, Lyme and MCS community’s Memorial Service for Rich Van Konynenburg on November 18, 2012 On Sunday, November 18, 2012, please
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A Tribute To Rich Van Konynenburg
Long time chronic fatigue syndrome supporter and theorist, Rich Van Konynenburg died last night in his sleep. His wife Diana reported: “There is no easy way to say this, and this message is very difficult for me to write. Rich died early this morning. It appears that he suffered a massive heart attack in his sleep. He did not have a
ContinueXMRV Buzz! The CFS/XMRV News Page
Posted by Cort Johnson March 6th The WPI’s response to CROI was “It is interesting that infectious XMRV is still found only in human cells and not in mouse cells or mice. In addition, these data have little to say about XMRV infection in humans.” In an email Dr. Mikovits stated “There is still not one piece of evidence of
ContinueChronic Fatigue Syndrome (ME/CFS) on a Budget
Treating chronic fatigue syndrome (ME/CFS) can be very expensive. Forget the doctors visits and tests, the cost for the supplements used in treating this multi-symptomatic disease can easily run into the hundreds of dollars a month. Many people with chronic fatigue syndrome (ME/CFS) simply lack the money to a) retain an often very expensive specialist or b) fully engage in
The IACFS/ME Conference II: Treatment – Physiological Approaches
The IACFS/ME Conference II: Treatment – Physiological Approaches Reno, Nevada: March 12-16, 2009 Introduction – The behavioral approaches to treating chronic fatigue syndrome (ME/CFS) won out on this conference with six presentations on behavioral approaches and only two on non-behavioral approaches to chronic fatigue syndrome. The poster section, however, was crammed with all sorts of non-behavioral (and behavioral) treatment
XMRV Buzz Jan 18th and 20th
Posted by Cort Johnson Dr. Mikovits Talks – Part II – we now have two accounts of Dr. Mikovits talk. Lannie has finished up her account and Paula Carnes has provided her overview as well. As often happens both contain bits the other does not. Paula reported Dr. Mikovits said that 30% of adolescents who have tested positive for XMRV will go
ContinueDr. Cheney Goes His Own Way: the Virginia 2009 Lecture
Posted by Cort Johnson Dr. Cheney gave a lecture on ME/CFS (chronic fatigue syndrome) on April 25th, courtesy of the Northern Virginia CFS/ME/FM and OI Support group. According to a report of the talk posted by Chris on CFSFMExperimental Yahoogroup on April 27th, Dr. Cheney, a creative physician and provocative speaker, did not disappoint. In a three hour non-stop, often
ContinuePotential treatments
As of 2022, unfortunately, there are no conventional, available drug therapies in any country for ME/CFS. The few specialist ME/CFS doctors that exist in some countries have their own treatment protocols, with variable results. Patients who cannot find a specialist must work with their regular doctor to seek treatment for their individual symptoms. Many patients experiment on their own. Bear
California 2014: IACFS/ME Day One: Translating Science into Clinical Care: 20 March 2014
The location has now moved to San Francisco, for the first day of the IACFS/ME 11th biennial event, and another exciting round of presentations to an even larger audience. Searcher was again present, with her Press Pass, and along with some very kind help, from Hope, managed to submit a solid review of some of the highlights… Conference objectives from
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Am I “Allergic to Life”?
Janis Bell (JanisB) reviews her personal journey of chronic illness after being inspired by a new article written by Jill Neimark and appearing online today in Discover magazine. It highlights the work of Dr Claudia Miller (pictured) and her theories relating to extreme chemical sensitivity and toxicants, a condition she terms, Toxicant-induced Loss of Tolerance or TILT. By the time
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An Interview with Dr Enlander
Joel (snowathlete) talks with Dr Derek Enlander about a range of topics including Ampligen, the FDA, GcMAF, Methylation, and the various research programs at the Mt. Sinai MEC. Dr Derek Enlander is an internationally recognized expert in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Fibromyalgia. Born in Belfast, Northern Ireland, he became a fellow of Stanford University Medical School in the USA
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The 20 Years Ago Today Series IV: 1992 and Now – What Have We Learned?
Posted by Cort Johnson In the World – President George Bush made news by suddenly falling violently ill and doing a face-plant into the lap of the Japanese prime minister. The European Union is formed (perhaps to break up 20 years later?) and a 12-year civil war ends in El Salvador. Yugoslavia breaks up and the Bosnian war begins… Pope
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