Posted by Cort Johnson It doesn’t always take a village; sometimes it just takes a committed few to possibly change the future of a disorder; in this case, it may come down to just thirty patients and two researchers in Norway. The news that 2/3rds of CFS patients taking a chemotherapy drug called Rituximab significantly improved in a rigorous, double-blinded
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Making Marly Count! Vote To Win $25,000 for ME/CFS
Posted by Cort Johnson Marly Silverman is a worker! How many people have played a major role in creating not one or two but three organizations? Marly first created PANDORA, then in response to the CDC’s new website, dreamed up the MWCPA and then was a key figure in getting the Coalition4MECFS off the ground. Plainly put Marly makes things
ContinueThe ‘X’ Drug For ME/CFS? CMX001 Promises Help
Posted by Cort Johnson This was taken from the Treatment section of “Looking Forward: Dr. Peterson on ME/CFS Research, Treatment and Hope for the Future”. This article was derived from notes I took after a talk with Dr. Peterson; the views enclosed hopefully reflect the essence of the talk but any mistakes, of course, are mine. Thanks to Corinne for
ContinueLooking Forward: Dr. Peterson on ME/CFS Research, Treatment Options and Hope for the Future
Posted by Cort Johnson (Looking Forward: Dr. Peterson on ME/CFS was derived from notes I took after a talk with Dr. Peterson; the views enclosed hopefully reflect the essence of the talk but any mistakes, of course, are mine. Materials were added from the IACFS/ME Ottawa conference to supplement the article). Thanks to Corinne for arranging a meeting with Dr. Peterson. Dr.
Continue‘Driving Miss Daisy’ : Corinne At Dr. Peterson – Visit #4 (May 2011)
Discuss this article on the forums (In what has become easily the best documented interaction of any patient with Dr. Dan Peterson, Corrine returns to see him for visit #4. Check out Corrines other blogs here as she brings up you close and personal with one of the most respected ME/CFS physicians in the US. Check out the beginning of
ContinueGo! Support the ME/CFS Community (Center) in the Citgo Refueling Contest
Posted by Cort Johnson Dan Moricoli is proof that even individuals afflicted with a severe illness can make a difference. Hampered by an alarming case of ME/CFS that has stymied many doctors Dan has nevertheless produced a unique place for people with CFS to gather and learn. The CFS Knowledge and ME/CFS Community Centers now have the most extensive trove
ContinueTaking the Initiative: The Chronic Fatigue Initiative For ME/CFS Takes Off
Posted by Cort Johnson We are focused on assembling the best team; developing a new strategy; formulating a straight-forward operating plan; and driving results. Scott Carlson, Director of the Chronic Fatigue Initiative There are times you can feel some momentum in the air. Yes, XMRV is in trouble and the WPI is re-evaluating their research program but other parts of
ContinueMikovits Era Ends – The WPI Makes the Right Move In Letting Chief Researcher Go: An Editorial
Posted by Cort Johnson The Mikovits era at the WPI was turbulent one, filled with almost Shakespearean highs and lows. With the discovery of XMRV she helped bring a degree of excitement and attention to the chronic fatigue syndrome field it never seen before. It was and is an turbulent time, and perhaps fittingly her departure was a turbulent one
ContinueTwittering the IACFS/ME Conference Pt III
Posted by Cort Johnson Quick hits from the IACFS/ME Ottawa Conference #IACFSME – on last day room is quite full. Immune session begins with 3 positive studies on #CFS fr. Australia (Bond), CDC and Lights (Utah) 21 hours ago CortJohnson Cort Johnson #IACFSME – brain blood flow study finds significantly reduced blood flows – anterior cingulate region may explain increased lactate in brain 19 hours
ContinueTwittering the IACFS/ME Ottawa Conference Pt. II
Posted by Cort Johnson Quick hits from the first two days of the Conference. Follow CortJohnson on Twitter tomorrow for more CortJohnson Cort Johnson #IACFS/ME – #Clauw reports #interstitial cytisus (allied with #CFS) will change name next year to reflect understanding about CNS origin 23 Sep CortJohnson Cort Johnson #IACFS/ME – #Clauw reports #interstitial cytisus research community acknowledges they were all wrong; its all the central nervous system. 23
ContinueTwittering the IACFS/ME Conference Pt. I
Posted by Cort Johnson Quick hits from International ME/CFS Conference in Ottawa. Follow CortJohnson on Twitter tomorrow for more…. CortJohnson Cort Johnson #IACFSME – over the past year 2 NIH CFS heads, Vivian Pinn the head of the Office of Women;s Health, CDC CFS Chief and Wanda Jones have left 19 minutes ago CortJohnson Cort Johnson #IACFSME – Mangan’s retirement is a big loss
ContinueRe-inventing ‘CFS’- the International Consensus Criteria for ME: the Marj Van de Sande Interview
Posted by Cort Johnson Just M.E. “The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We examine ME’s role in this disorder throughout the month. All articles,
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