Posted by Cort Johnson Discuss this article on the forums CBS News was in Miami yesterday filming the Miami Coral Gables CFIDS Group meeting with Dr. Klimas. According to reports Dr. Klimas met with them after the meeting to do an interview about the PACE trial and Dr. Natelson’s new study validating a previous study finding abnormal proteins in the
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A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No …
Posted by Cort Johnson The biggest and the baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program alone was hundreds of pages
ContinueA Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No…
Posted by Cort Johnson Discuss this article on the forums The biggest and baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program
ContinueCDC Chief Unger Pledges to ‘Restore Trust’ – Agrees to Meet with ME/CFS Reps
Posted by Cort Johnson Discuss this article on the forums In an abrupt break with past history, the new Chief of the CDC’s CFS research program, Dr. Unger agreed to meet with ME/CFS reps to discuss concerns about the CDC’s CFS program. Her predecessor Dr. Reeves had refused several efforts by patient reps to meet. The meeting was prompted by
ContinueIn the Dragon’s Jaws: How To Be Sick – A Buddhist Guide to CFS by Toni Bernhardt #1
Posted by Cort Johnson Discuss this article on the forums Written by Cort The Quality of Life Blogs This is the start of a series of blogs on Toni Bernhardt’s book “How to be Sick: A Buddhist Inspired Guide for the Chronically Ill and Their Caregivers”. I will supplement my background with a more Western approach with Toni’s Buddhistic approach
ContinueThe Battle in Belgium
Posted by Cort Johnson Discuss this article on the forums Written by hildevdh (Dark Days in Europe – Not long after Dr. Myhill was attacked (and got reinstated) two physicians in Belgium are threatened with the loss of their license as well.) “Chronic fatigue is a rubbish-dump” – The battle for the CFS patient. Original (Dutch): https://www.standaard.be/artikel/detail.aspx?artikelid=3835C9OL&subsection=3 By Griet Plets,
ContinueReviving the Broken Marionette: THE Drug Reference for CFS and FM
Posted by Cort Johnson Another treatment book I thought…….Dr. Teitlebaum’s books had pretty comprehensively covered the waterfront for me on that end. What more could a patient authored book offer? It turns out – a lot. Maija Haavisto is a Finnish writer with CFS who’s health was declining rapidly when she found a drug, low-dose Naltrexone. (LDN), that stopped the
ContinueWho cares that I feel like crap? Not me (anymore) by Suzanne Wigginton
Discuss this article on the forums Written by Cort Suzanne is a registered hypnotherapist and masseuse with ME/CFS. She is offering a free course in hypnotherapy to one person in Phoenix. In this blog she talks about ‘acceptance’. I do not feel well much of the time. Be assured, this is just an unbiased observation not a judgment, a call
ContinueEmpty Sella Syndrome and CFS: A Proposed Patient Study
Posted by Cort Johnson Empty Sella Syndrome: A Proposed CFS Patient Study – We propose a study to possibly characterize the first anatomical abnormality in CFS – empty sella. Adin suggested this study based on his MRI records showing that a filled sella early in the disorder and an empty sella later on. I know of another person who’s has
ContinueTime to Make a Difference Together by Marly Silverman
Discuss this article on the forums “For having lived long, I have experienced many instances of being obliged, by better information or fuller consideration, to change opinions, even on important subjects, which I once though right but found to be otherwise.” Benjamin Franklin Once again I am excited about what is to come in the months ahead in the NeuroEndocrineImmune
ContinueThe Patient Side – WPI Clinical Director Dr. Deckoff-Jones Talks
Posted by Cort Johnson The XMRV finding has put the spotlight for the past year on the research side of the WPI (or the Center for Neuro-immune Disease) but that’s just half of the equation. When the Clinical side of the Center opens sometime in May it will bring an entire new entity to the ME/CFS Community…an integrated clinic/research facility.
ContinueThe Patient Side: WPI Clinical Director Dr. Deckoff-Jones Talks
Posted by Cort Johnson Discuss this article on the forums The XMRV finding has put the spotlight for the past year on the research side of the WPI (or the Center for Neuro-immune Disease) but that’s just half of the equation. When the Clinical side of the Center opens sometime in May it will bring an entire new entity to
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