Posted by Cort Johnson The Fundraiser is (very quickly!) over. We raised $2650 in cash donations and $650 in software (to be delivered) in about a day and a half – a remarkable turnout. A big thank you to everyone who made the fundraiser such a success. We know the financial stresses that come with CFS and we very much
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The ‘Optimize Dr. Bateman’s Research’ Fundraiser
Posted by Cort Johnson The first ‘Official’ Phoenix Fundraiser will provide essential information infrastructure elements to Dr. Bateman that will assist her in her studies on XMRV with Dr. Light/Singh, on XMRV with Glaxo-Smith Kline, on muscle and other receptors with Dr. Light, on Ampligen with Hemispherx and other studies. etc. – from CBS, Cort Why Should We Help? Reason
ContinueThird Times a Charm: How I Learned to Pace Myself
Discuss this article on the forums By Rosemary Rowlands Posted with permission from the CFIDS and Fibromyalgia Self-Help Website I’ve had CFS for more than 20 years. My health declined gradually and was very poor by a few years ago. Since then, however, using pacing ideas from the self-help program and other sources, I’ve made steady progress and my life
ContinueTaking Back the CFSAC
Posted by Cort Johnson Discuss this article on the forums Written by Cort We saw the power of the Federal Advisory Committee on CFS (CFSAC) last October when Annette Whittemore, Dr. Peterson, Dr. Coffin and others presented live testimony on video on XMRV. The Committee is one of the only places where federal officials can compelled to give public testimony
ContinueA Few Paleo Thoughts by Lisa
Discuss this article on the forums Written by Lisa (picture supplied by Cort) Tuesday will be exactly four months since we made the switch to a Paleo lifestyle. I can still hardly believe how much meat we consume each week because I have never in my life been a huge meat eater. The previous 12.5 years of vegetarianism, over a
ContinueEvening Up the Odds – the SolveCFS BioBank Begins
Posted by Cort Johnson The odds have always been against the researchers with the guts or commitment to take ME/CFS on. With it’s unfortunate name, vague definition and complicated, multi-systemic nature it’s gotten little respect and even less funding. Everybody knows the statistics – last in the NIH in funding….$20 billion in economic losses and easily, easily the lowest dollar
ContinueXMRV and ME/CFS: the WPI Throws the Gauntlet Down
Posted by Cort Johnson Written by Cort Yes, the WPI has been frustrated, and sometimes vocally so, regarding the inability of the three XMRV studies to validate the original Science study results. Yesterday, in a surprise announcement Annette Whittemore threw the gauntlet down, so to speak. For sure she did it politely but her proposal that Dr. McClure, one of
ContinueXMRV and ME/CFS: Check, Check, Check
Posted by Cort Johnson The past few months have not been easy for XMRV. The head of the Dutch study flatly stated that he believed the WPI’s samples had been contaminated. Dr. Shepard’s assessment was nothing if not gloomy and Dr. Vernon’s seemed to suggest that if the WPI’s results stood up that they probably applied only for a select
ContinueWhat I Look Like Just Doesn’t Matter
Discuss this article on the forums Written by Kelvin Lord Kelvin Lords Continuing Experiences with Ampligen (ed) I admit it. I now have a pot-belly. And it bothered me. After being underweight for the past 2+ years, struggling with a lack of appetite and the associated difficulties in maintaining weight, since being on Ampligen for 2 1/2 months, hunger has
ContinueXMRV’s Big Test Has Begun: The Fed Study Ramps Up
Posted by Cort Johnson Courtesy of the Wall Street Journal we finally got a look at what will surely be the most comprehensive XMRV study that we’ll see. It will surely clear up many of the questions surrounding the virus. It’s a full bore effort; one that probably only the federal government could take on. Six labs will be involved
ContinueLight in the Darkness: Good News Ahead For XMRV by Cort Johnson
Posted by Cort Johnson (The Bringing the Heat Blog was down for about 1 month. Get ready for a slew of blogs to come your way’) A month ago the head Dutch researcher, Kuppeveld, stated that he considered XMRV story over. After what he described as an intense effort to find the virus failed he was folding up shop on
ContinueVirologists Assess XMRV by Cort Johnson
Posted by Cort Johnson Dr. Goff, one of the top retrovirologists in the field, taked with Dr. Racaniello about XMRV for almost an hour. This was a rare opportunity to hear how experts in the field assess the XMRV/CFS connection. Here’s my take on what they said from the XMRV Buzz Page XMRV and the Prostate – One way researchers
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