Posted by Cort Johnson Written by Cort Dr. Goff, one of the top retrovirologists in the field, taked with Dr. Racaniello about XMRV for almost an hour. This was a rare opportunity to hear what experts in the field felt about the XMRV/CFS connection. Here’s my take on what they said from the XMRV Buzz Page XMRV and the Prostate
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Muddy Waters: XMRV and ME/CFS by Cort Johnson
Posted by Cort Johnson The patient community has been on a wild ride lately. No, no studies have been published but patients are digging deeper into the studies and coming up with some surprising findings. Three er… Make That Two CFS XMRV Validation Studies? After digging deeper into the cohort from the last Dutch study Parvofighter on the Phoenix Rising
ContinueGarlic: Virus-Killer; Libido-Booster
Discuss this article on the forums Written by Kelvin Lord Yes, I’m going to talk about sex in this post, because one of our challenges is that this hideous virus not only diminishes our libido, but sometimes completely wipes it out. But I’m also going to discuss what I’ve found to be one of the best remedies for that part
ContinueGoff- Racaniello XMRV CFS Talk Parts I and II
Posted by Cort Johnson Written by Kati This is a rare chance to get a view of how the XMRV/CFS connection is viewed by virologists outside of the ME/CFS field Part I: Transcribed by Kim TWiV 76: XMRV with Professor Stephen Goff by Vincent Racaniello on April 4, 2010 VR: I wanted to talk about XMRV with you. SG: Okay.
ContinueStory — EFT for Sensory Overload and More
Posted by Cort Johnson Written by Wayne Wayne posted this story of the benefits a person with brain trauma received from using EFT. It’s interesting how many of her symptoms resemble those found in ME/CFS and it illustrates how these types of techniques can alter neural functioning. I imagine that the right type of brain scan would have revealed a
ContinueProteins on the Brain’: A Breakthrough for ME/CFS?
Posted by Cort Johnson Discuss this article on the forums In 2008 I participated in Dr. Baraniuk’s spinal tap study at Georgetown University in Washington, D.C. Some readers may remember how exciting Dr. Baraniuk’s first proteome study was; it was the easy winner of the Phoenix Rising Paper of the Year. The study suggested that chronic fatigue syndrome (ME/CFS) patients
ContinueSpinal Tapping For ME/CFS
Posted by Cort Johnson Discuss this article on the forums Written by Cort I’d contacted Dr. Ravindran earlier and mentioned I was coming out to DC but we fell out of contact and I assumed my chances of getting the study in while I was in town were nil. It didn’t help that I waited for several days before I
ContinueAn East Coast WPI? Support the New Jersey NEID by Cort Johnson
Posted by Cort Johnson Marly Silverman and others at PANDORA and the Landford Foundation have big plans. She wants nothing less than to build the first NeuroEndocrineImmune Center for the research, treatment and education into diseases like Chronic Fatigue Syndrome, Fibromyalgia, Gulf War Syndrome, multiple chemical sensitivity and others in New Jersey. (Think the WPI’s Neuro-Immune Institute with the ‘Endocrine’
ContinueScandal in BMJ’s XMRV/CFS Research: BMJ and XMRV Unplugged
Discuss this article on the forums By Parvofighter PART 1 Much has been made of the “well-characterized” or “well-defined” patient cohorts (https://www.bmj.com/cgi/content/abstract/340/feb25_1/c1018) of the failed XMRV-in-ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) replication attempts. “Well characterized” somberly implies that the patients studied were robustly and meaningfully comparable to those in the landmark Science XMRV study. Namely: Canadian/Fukuda Criteria Chronic Fatigue Syndrome patients
ContinueFeeling the Wind on My Face Again (Ampligen Chronicles Trt#16)
Discuss this article on the forums Written by Kelvin Lord Treatment #16 – by Kelvin Lord Today was the best day I’ve had in a long time. Like my old 1976 Cutlass Supreme years ago, my engine was humming, my hydramatic transmission was smooth as butter, and I even had the “new car smell” on me. This old vehicle actually
ContinueA WPI in New Jersey? Support the NEI Center!
Posted by Cort Johnson Written by Cort Marly Silverman and others at PANDORA and the Landford Foundation have big plans. She wants nothing less than to build the first NeuroEndocrineImmune Center for the research, treatment and education into diseases like Chronic Fatigue Syndrome, Fibromyalgia, Gulf War Syndrome, multiple chemical sensitivity and others in New Jersey. (Think the WPI’s Neuro-Immune Institute
ContinueEmergency at the Emergency Room
Posted by Cort Johnson Discuss this article on the forums Written by Cort Is there any more terrifying place for CFS patient to be than the emergency room the hospital? Sure, emergency rooms are upsetting for everybody but to be in emergency room knowing that the ER personnel’s biases towards you could leave you with substandard care, at the very
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