Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London … The 11th Invest in ME International ME Conference (IIMEC11) was held at One Great George Street, just down the road from its previous home on Birdcage Walk, on Friday June 3rd, 2016. You can view the full conference
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Agents for Change: The 10th Invest in ME International ME Conference, 2015 – Part 1
Mark Berry reports on the 10th Invest in ME International ME Conference in London. The 10th Invest in ME International ME Conference (IIMEC10) was held, as usual, in the Lecture Theatre at 1 Birdcage Walk in Westminster on May 29th, 2015. You can view the full conference programme (with photos and biographies of the speakers) here. The highly-recommended DVD of
ContinueJen Brea launches mass-advocacy platform — #MEAction goes live!
Sasha gives you the tour and tells you what it’s all about… Jen Brea is a phenomenon. After working as a freelance writer in China and Africa, she enrolled for a PhD at Harvard in political science but, four years ago, got sick. She had a fever that lasted ten days. Her health collapsed, and she was forced to go
ContinuePhoenix Rising Adds Two New Board Members
Mark Berry introduces the new President of Phoenix Rising, Dr. Gary Solomon, and welcomes Professor Jonathan Edwards to the Phoenix Rising Board of Directors. On behalf of the Phoenix Rising Board of Directors, I’m delighted to announce the appointment of two new board members. Regrettably, I also have to say goodbye to one. Karen Luoto has stepped down as President.
Continue9th Invest in ME International ME Conference, 2014 – Part 2: Pathogens and the Gut
Mark Berry continues his series of articles on the 9th Invest in ME International ME Conference in London, with the emphasis shifting from autoimmunity to pathogens and the gut … This is the second in a series of articles reporting on the 9th Invest in ME International ME Conference (IIMEC9), held as usual in the Lecture Theatre at 1 Birdcage
Continue9th Invest in ME International ME Conference, 2014 – Part 1: Autoimmunity and ME
Mark Berry begins a series of articles on the 9th Invest in ME International ME Conference in London, with a look at three presentations on autoimmunity This is the first in a series of articles reporting on the 9th Invest in ME International ME Conference (IIMEC9), held as usual in the Lecture Theatre at 1 Birdcage Walk in Westminster on
ContinueScience to Patients: Talking ME, Exercise and the Mitochondria – with Dr Charles Shepherd
The latest video release from the Dutch group ME/cvs Vereniging, with Dr Charles Shepherd from the UK ME Association, and announcing a live chat session to be held Thursday, April 10, 2014… ME/cvs Vereniging launched a series of broadcasts from expert clinicians and researchers in January 2013, as part of a government subsidized project called, “Science to Patients”. Each expert
ContinueBlood Tests: Why Test the Blood? Dr Charles Shepherd
The Medical Advisor to the ME Association, Dr Charles Shepherd, writes about the importance of blood testing prior to receiving a diagnosis, explains what each test means including for children, and considers when new tests might be necessary… Human blood contains red cells, white cells, platelets and plasma. Red blood cells carry oxygen around the body – so a deficiency
ContinuePhoenix Rising 2013 Annual Report
Mark Berry, Acting CEO of Phoenix Rising, presents our Annual Report for 2013 Phoenix Rising’s board of directors and volunteers were faced with a daunting set of challenges at the start of 2013, following the departure of our founder Cort Johnson. With only a skeleton staff of volunteers, the tasks that lay ahead of us were to stabilize the organization’s
ContinueAction for M.E. – Placing Patient Views at the Heart of a New Research Strategy
Action for M.E. – the UK’s largest CFS/ME charity – launched a new research strategy in November based on the priorities identified by patients. We asked the Charity’s Chief Executive, Sonya Chowdhury, about the new strategy and also about the commitment to greater patient involvement. By Russell Fleming and Simon McGrath. Charities have always connected with patients – many were
ContinuePhoenix Writing: join our team of writers and editors!
by the Phoenix Rising Content Team Do you ever read a Phoenix Rising article and think, ‘I could write something like that’? Or do you fancy helping articles through the publication process, onto the front page and beyond? Then maybe you’d like to join our Content Team of writers and editors and help produce articles that will be seen here,
ContinueInterview: Professor Jonathan Edwards on the UK Rituximab trial
by Sasha The charity Invest in ME’s plans for a UK Rituximab trial got a substantial boost at the end of July when Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine at University College London (UCL), agreed to act as their advisor for the study. ‘No UK expert is better placed than Professor Edwards to advise us on setting up
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