Posted by Cort Johnson Virtually every ME/CFS research and non-profit is in the same fix – they’re big on ideas and short on money. The CAA, of course, has the same problem… even though, arguably, the needs in ME/CFS are larger than almost any other disorder, next to the big medical non-profits like the Susan G. Komen Foundation for breast cancer,
ContinuePosted by Cort Johnson Our apologies for hitting you with two Support Phoenix Rising letters in one day but we discovered that a crucial link -the one time donation link – in the first letter did not work. This time it does. Thanks for your patience and understanding. Please invest in Phoenix Rising’s commitment to rigorous reporting and innovative web solutions
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Posted by Cort Johnson ME/CFS can be isolating but people with ME/CFS do not have to be isolated and Phoenix Rising is a big reason why. If John in Los Angeles wants to get the latest info on GcMAf; if Pat in Miami needs to get the latest research news, if Mary in the UK just wants to chat –
ContinuePosted by Cort Johnson Phoenix Rising is committed to being a leader not only within the ME/CFS field but in how web technologies can be innovatively used to support people with health problems (in our case ME/CFS). We see many ways health support sites could be improved and we plan to make a Phoenix Rising a model of how people
ContinuePosted by Cort Johnson The Forums are a major part of Phoenix Rising. In recognition of this we have allotted a permanent space on the Phoenix Rising Board of Directors to be filled by a Forum member. Depending on how many nominations come in we will hold a vote; and the top three nominees will go to the Board and
ContinuePosted by Cort Johnson The CAA – a Timeline – Events and Finances of the Past Ten Years. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association Event Timeline.
ContinuePosted by Cort Johnson Check out an overview of the CAA’s activities over the turbulent first decade of the 21st century…their hits, their misses, their ups, their downs….. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association – the last Ten Years.
ContinuePosted by Cort Johnson Check out the comprehensive CFIDS Association Interview as former Chairman of the Board Jennifer Spotila talks about the organization past and future, its tangled association with the CDC, why it made some the decisions it did and more. via Chronic Fatigue Syndrome ME/CFS News From Phoenix Rising – CFIDS Association Interview with Jennifer Spotila.
ContinuePosted by Cort Johnson < strong> Register For Blood Working Group CFS Webinar – Support CFS at the Dept of Health and Human Services – register for the CAA Blood Working Group Seminar The DHHS is where the money is. Whether you love, like, dislike or cringe at the idea of being associated with the CFIDS Association, I encourage you
ContinuePosted by Cort Johnson The CFIDS Association started off what’s going to be an exciting week for XMRV with a CFIDLINKs devoted to asking the experts about XMRV. Fittingly enough Dr. Lo and Alter were first. After noting that both groups, the Alter/Lo and WPI/NCI/Cleveland Clinic groups had found a similar ‘strong association’ between murine Leukemia retroviruses (in one case
ContinuePosted by Cort Johnson The New York Times lead article today “Sharing of Data Leads to Progress on Alzheimer’s”. described how a bold new type of research effort paid off big time in Alzheimer’s. All it took to succeed was for researchers to make a commitment to work together, share and collaborate…. nothing much really – just a commitment to
ContinuePosted by Cort Johnson Dr. Racaniello and Dr. Bateman talked XMRV (mostly) at the CFID’S Association Webinar on Wednesday. DR. RACANIELLO gave us a bird’s eye of retroviruses. Right now there are two models for human infectious retroviruses; HIV, which replicates madly in immune cells and sends millions of virions into the blood to infect more cells and HTLV-1, which
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