Category: Miscellaneous

Posted by Cort Johnson Dennis Mangan had made good big time on his NIH makeover thus far. First it was the impromptu meeting with patients at the CFSAC meeting. Then there was the name change (ME/CFS), the ListServ, then using patients and researchers to produce the first NIH Research Workshop/Conference in 8 years. The Workshop is every bit as good

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Posted by Cort Johnson Discuss this article on the forums As the International Workshop on Chronic Fatigue Syndrome (ME/CFS) approaches now is a good time to look at where we are. The Workshop is just two days but it’s a big deal because it will present where the state of XMRV, of course, dominated our interest last year but quite

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Posted by Cort Johnson Prostate Study Negative – The latest XMRV prostate cancer study by a two groups of Japanese and UK researchers (Hue, Towers) failed to find XMRV – which might not be news except that this study used the same immunohistochemistry (IHC) analysis that Dr. Singh used to find XMRV. These researchers used Dr. Singh’s IHC test and

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Posted by Cort Johnson Discuss this article on the forums In “On Hope and Healing” a book devoted to disorders such as ME/CFS and FM, Dr. Nathan states “Of all the ideas presented in this book, food allergy is one of the commonest and often ‘easiest’ to address. It is truly a shame that its importance is not universally recognized.”

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Posted by Cort Johnson XMRV has taken some hits lately but there have been some hopeful hints as well and Riley on the PR Forums put a list of them together. He said “they say that the darkest hour is before the dawn, and I believe we are in that darkest hour” and here is why he believes XMRV will

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Posted by Cort Johnson Discuss this article on the forums We are in the process of making major changes to Phoenix Rising. As part of that we are going to move the Forums to a new host and new URL on Thursday. They will be down starting 11AM PST/2PM EST/1900 UK Time and should be down at the most for

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Posted by Cort Johnson Discuss this article on the forums This is a great sign from Amy Dockser Marcus that for her ME/CFS is bigger than XMRV – that she’s interested in the disease itself. We don’t know how XMRV is going to turn out but we do know that, whatever happens with XMRV, we want Amy and others to

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Posted by Cort Johnson Nature, (the second most read Science Journal in the world, published a long article on the search for XMRV. I think it’s pretty even handed. The article clearly outlines Dr. Mikovits commitment to the patients (and their commitment to her), gives us some idea why Dr. Peterson left, reviews the contamination issues, tells us that a

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Posted by Cort Johnson Discuss this article on the forums I was sitting in Starbucks browsing the front page of the Wall Street Journal – and saw something about “War on Mystery Disease”….and there’s no way…… and then gulped. Yes, chronic fatigue syndrome was the Front Page of the most popular and influential newspaper in the United States. That’s right

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Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord I’ve been sitting on this story for a couple months now at the personal request of a couple physicians who were “on the fence” but I can now share with those who are interested in getting Ampligen, the future might be a little brighter. As you

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Posted by Cort Johnson Discuss this article on the forums John Falk is a journalist and author who came down with ME/CFS a couple of years ago after getting an infection while traveling outside of the country. He’s been out of commission for a couple of years and has now shown up at the Huffington Post writing openly about CFS.

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Posted by Cort Johnson Discuss this article on the forums CBS News was in Miami yesterday filming the Miami Coral Gables CFIDS Group meeting with Dr. Klimas. According to reports Dr. Klimas met with them after the meeting to do an interview about the PACE trial and Dr. Natelson’s new study validating a previous study finding abnormal proteins in the

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