Posted by Cort Johnson Discuss this article on the forums The biggest and baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program
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CDC Chief Unger Pledges to ‘Restore Trust’ – Agrees to Meet with ME/CFS Reps
Posted by Cort Johnson Discuss this article on the forums In an abrupt break with past history, the new Chief of the CDC’s CFS research program, Dr. Unger agreed to meet with ME/CFS reps to discuss concerns about the CDC’s CFS program. Her predecessor Dr. Reeves had refused several efforts by patient reps to meet. The meeting was prompted by
ContinueIn the Dragon’s Jaws: How To Be Sick – A Buddhist Guide to CFS by Toni Bernhardt #1
Posted by Cort Johnson Discuss this article on the forums Written by Cort The Quality of Life Blogs This is the start of a series of blogs on Toni Bernhardt’s book “How to be Sick: A Buddhist Inspired Guide for the Chronically Ill and Their Caregivers”. I will supplement my background with a more Western approach with Toni’s Buddhistic approach
ContinueThe Battle in Belgium
Posted by Cort Johnson Discuss this article on the forums Written by hildevdh (Dark Days in Europe – Not long after Dr. Myhill was attacked (and got reinstated) two physicians in Belgium are threatened with the loss of their license as well.) “Chronic fatigue is a rubbish-dump” – The battle for the CFS patient. Original (Dutch): https://www.standaard.be/artikel/detail.aspx?artikelid=3835C9OL&subsection=3 By Griet Plets,
ContinueWho cares that I feel like crap? Not me (anymore) by Suzanne Wigginton
Discuss this article on the forums Written by Cort Suzanne is a registered hypnotherapist and masseuse with ME/CFS. She is offering a free course in hypnotherapy to one person in Phoenix. In this blog she talks about ‘acceptance’. I do not feel well much of the time. Be assured, this is just an unbiased observation not a judgment, a call
ContinueTime to Make a Difference Together by Marly Silverman
Discuss this article on the forums “For having lived long, I have experienced many instances of being obliged, by better information or fuller consideration, to change opinions, even on important subjects, which I once though right but found to be otherwise.” Benjamin Franklin Once again I am excited about what is to come in the months ahead in the NeuroEndocrineImmune
ContinueThe Patient Side: WPI Clinical Director Dr. Deckoff-Jones Talks
Posted by Cort Johnson Discuss this article on the forums The XMRV finding has put the spotlight for the past year on the research side of the WPI (or the Center for Neuro-immune Disease) but that’s just half of the equation. When the Clinical side of the Center opens sometime in May it will bring an entire new entity to
ContinueNIH have gotten Myra McClure, Dentists and Psychs to go to Work on You!
Discuss this article on the forums Written by justinreilly UPDATE: Myra McClure Stepped Down from the “CFS” SEP! We did it! We still need to get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so please refer to my latest blog post for an easy letter you can send on that score. Again: Yea
ContinueStars Not Aligning Any More: CFS NIH Grant Panel (SEP) Reverts, McClure on Board
Posted by Cort Johnson Discuss this article on the forums CFS GRANT REVIEW (SEP) Meeting Roster – (2/22/2011 – 2/23/2011) The last CFS SEP Panel, heavy with immunologists and other CFS researchers, was remarkably changed. (Unfortunately Dr. Klimas called the number of grant proposals was ‘pitiful’ – so it’s not clear how helpful they were.) The present panel is remarkably
ContinueWhat is Healing?
Discuss this article on the forums Written by Lisa (originally posted at Sundog Tales) What is Healing? I have pondered this question many times. Recently, I have begun to see signs of deep physical healing at long last, but why? What has changed? I now sleep 12-15 hours a day. That’s a 10-12 hour night and one or two naps
ContinueShow ’em your mad, Fax the ad!
Discuss this article on the forums Written by Lynn Show ’em You’re Mad Fax the Ad Political action to reach the Freshman congressman just sworn in. New Congressmen have settled into office, but they do not realize there is a health threat that deserves more government funding. So let’s tell them. The previous fax campaign was successful in getting some
ContinueBook Review of Elizabeth Turp’s book "Chronic Fatigue Syndrome/ME"
Discuss this article on the forums Written by Jody I’ve written a book review and posted it on empowher.com Here is a link — “Elizabeth Turp’s Book “Chronic Fatigue Syndrome/ME”: A Review” Here is Jody’s review Elizabeth Turp has written a book called “Chronic Fatigue Syndrome/ME” for sufferers of CFS/ME and the people who care about them. A book on
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