Posted by Cort Johnson Discuss this article on the forums Written by sproggle I’d really appreciate it if members of this forum could get behind this campaign, we need as many participants as possible to give us the best chance of receiving a meaningful response and not a useless standard reply! The full details, which I have posted below, can
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CFIDS Association: the last Ten Years – A Timeline (Events and Finances)
Posted by Cort Johnson Discuss this article on the forums 2000 Citing stagnation in the field, CAA stops receiving or funding grants and instead launches a series of scientific symposium designed to open up new avenues of research. They include “Does Dysautonomia Play a Role In the Pathophysiology of This Complex Illness “, “Neuroendocrine Aspects of CFS “, Immunological Aspects
ContinueCFIDS Association Of America Interview with Jennifer Spotila
Posted by Cort Johnson Discuss this article on the forums Jennifer Spotila was Chairman of the Board of the CFIDS Association of America from 2008-2009 and is a Board member today. Companion Articles CFIDS Association: the Last Ten Years – An Overview CFIDS Association: a 2000-2010 Timeline Can you briefly tell us your story with chronic fatigue syndrome (ME/CFS)? Jennie’s
ContinueThe CFIDS Association: the Last Ten Years – An Overview
Posted by Cort Johnson Discuss this article on the forums In 2001 Marc Iverson resigned from the CAA Board citing different priorities and a different vision for the organization. He envisioned an organization that would become a hub for patient activities on the internet and had his view prevailed presumably we would have seen forums, blogs and physician and treatment
ContinueME/CFS Orgs Petition the CDC For Change
Posted by Cort Johnson Discuss this article on the forums (From Muffin) – This petition is quite far-reaching and outlines what patients expect from the new CDC/CFS head, Dr. Unger. The petition authors made sure to include communication to the very senior players so that the petition will have impact. It is a well written document and has ideas that
ContinueClinical Study of Simplified Yasko Protocol for CFS and Fibromyalgia
Posted by Cort Johnson Clinical Study of Simplified Yasko Protocol for CFS/fibromyalgia Rich Van Konynenburg, Ph.D. Independent Researcher/Consultant richvank@aol.com Neil Nathan, M.D. Gordon Medical Associates Santa Rosa, CA Yasko Protocol Conference – Boston July 30-August 1, 2010 • Type: Open-label clinical study • Setting: A single private practice in Springfield, Missouri • Informed consent: Patients signed forms after explanation of
ContinueApplication of Yasko Protocol to the Treatment of Chronic Fatigue Syndrome by …
Posted by Cort Johnson Application of the Yasko Protocol to the Treatment of Chronic Fatigue SyndromeRich Van Konynenburg, Ph.D. Independent Researcher/Consultant richvank@aol.comNeil Nathan, M.D. Gordon Medical Associates Santa Rosa, CA info@gordonmedical.com Yasko Protocol Conference – Boston July 30-August 1, 2010 ____________________________________ Disclaimers 1. People undergoing treatment for chronic fatigue syndrome as discussed in this talk must be under the care
ContinueHealKick! Forum for Young Adults with ME/CFS Begins
Posted by Cort Johnson Discuss this article on the forums PR member mojoey has created Healkick, a group that aims to provide a medical, social, and professional network for 40-and-under young adult patients with neuro immune disease (ME/CFS, fibromyalgia, chronic lyme, atypical MS, MCS, and mold illness.) In order to join, please go to groups.google.com/group/healkick (you’ll need to sign up
ContinueMy Ampligen Treatment Continues (Ampligen Chronicles #2)
Discuss this article on the forums Written by Kelvin Lord Treatment #2 “In times of sickness the soul collects itself anew” Latin Proverb I arrived at the medical center this morning a little before 10:00AM with a slight headache , because of the drive, and because as a former-perfectionist, I hate to be late. My plan was to get there
ContinueMy Ampligen Treatment Continues (Ampligen Chronicles #3)
Discuss this article on the forums Written by Kelvin Lord Treatment #3 Three down, scores more to go! Today as before, Gwen got the needle in quickly, and strapped me up to 200ml of Ampligen, this time pushed through in under 35 minutes. Today I followed that up with a saline infusion, recommended by many, and it seemed to actually
ContinueTesting Negative – Staying Positive: Dr. Mikovits Santa Rosa XMRV Presentation by Paula Carnes
Posted by Cort Johnson Discuss this article on the forums (Thanks to Paula for allowing us to post her review of Dr. Mikovits Talk here. You can find the original post at her blog here. ) I made the long trek from Las Vegas to Santa Rosa hoping to find answers to mysterious questions such as “What is the origin
ContinueWeed Killer Turns Male Frogs Into Females (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord Treatments #13 and #14 I’ll get to the weed-killer analogy quickly. But first, allow me a little celebration- today marks my eighth week on Ampligen, and I’ve now officially entered the “plateau” phase of my treatment. Whereas at first I was seeing almost weekly improvements in things like my sleep,
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