Posted by Cort Johnson Discuss this article on the forums There was something for everybody (or not for everybody) on the Twiv podcast – yes they felt the dangers of contamination were real, no the Retrovirology papers did not prove anything, sequence variation could be confounding results, etc…. Dr. Rein has worked extensively on murine leukemia viruses and HIV. Dr.
ContinueCategory: Miscellaneous
Being and Thinking: the Quality of Life Blogs Begin
Posted by Cort Johnson Looking for Happiness in an Unwell World #1 Being and Thinking What is ‘be- ing’? It’s very simple – almost too simple; it’s just what it appears to be – it’s just be-ing – it’s the place present just before thought… a place of stillness and peace that spiritual practitioners (and philosophers) assert is who we
ContinueDr. Mikovits on XMRV: The Sweden Talk
Posted by Cort Johnson Discuss this article on the forums Dr. Mikovits noted that Dr. Sandra Ruscetti has worked on mouse viruses for almost 40 years. After work on HIV halted work on MLV’s and cancer she saved her reagents….. and these were the reagents the WPI used. Dr. Ruscetti came out of retirement to help out with the current
ContinueMore Community Outreach From the NIH: Mangan Sets up Email Listserve for the ME/CFS Community
Posted by Cort Johnson Discuss this article on the forums Written by Cort Talk about reaching out and communicating. Dennis Mangan, the leader of the CFS Working Group at the NIH, has set up a ListServe that will automatically send you information from the NIH on what their ME/CFS activities. Bit by bit Dennis is transforming the way the NIH
ContinueDay Two: Australian CFS Science Conference By Rosamund Vallings
Posted by Cort Johnson Discuss this article on the forums Written by Cort Day Two of the Australian Conference by Rosamund Vallings – Conference explicator extraordinaire :) DAY 2 Day 2 was involved in general discussion with various panels looking at clinical matters, case definition, guidelines and research collaboration. Possible name change was also discussed. There was plenty of open
ContinueChristmas XMRV Video – Giving Hope and Thanks This XMAS
Posted by Cort Johnson Discuss this article on the forums Written by VillageLife Giving Hope and Thanks This Christmas.
ContinuePhoenix Rising and Rising….PR Is Official!
Posted by Cort Johnson Phoenix Rising is an officially designated 501 3C non-profit which means that donations are tax deductable, and, of course, we’d love to take some off your hands :) Phoenix Rising is currently engaged in several exciting projects; two treatment and physician review projects to help patients better determine which treatments to take and which doctors to
ContinueME/CFS Books for the Holidays
Posted by Cort Johnson Discuss this article on the forums All these books are by people with ME/CFS and all have received excellent reviews. This is an opportunity to support people with ME/CFS and get a good read in at the same time. If you know of other books please add them in the comments :) Unbroken by Lauren Hillebrand
ContinueChristmas Shopping For Phoenix Rising
Posted by Cort Johnson Discuss this article on the forums Shopping! The easy way to support Phoenix Rising as it becomes a non-profit and begins taking on some large projects. Every time you use Phoenix Rising to purchase something on Amazon.com Phoenix Rising will receive a 4 to 8% return on your purchase. All your purchases will take place on
ContinueBlood Products Advisory Committee Meeting Announcement (BPAC) December 14-15, 2010
Discuss this article on the forums Written by Otis Support CFS at the Dept of Health and Human Services – register for the CAA Blood Working Group Seminar The DHHS is where the money is. Whether you love, like, dislike or cringe at the idea of being associated with the CFIDS Association, I encourage you to register – so that
ContinueA ‘Draw’ at the Blood Working Group Meeting
Posted by Cort Johnson Discuss this article on the forums A Wild Day- the Blood Working Group Reports – All thanks have to go to ValB626 on the MECFS Forums for just pouring out page after page of details from the hours of testimony and discussion on XMRV. Without it we would have had very little. It was exciting, we
ContinueUse "Powerful Rest" to Improve Your Life
Discuss this article on the forums Written by ggingues (I snagged this from the Lifestyle Management section. This is another example of doing little things that to help improve one’s quality of life. Focused resting is a very different and, I find, much more pleasurable and restful way of resting than simply lying there. It’s not sexy and it’s no
Continue