Carol Schmid examines what it is about the nature of ME/CFS that makes it likely to generate skepticism. Despite ME/CFS being an illness so severe that it has been found to cause a poorer quality of life than any major illness including cancer [1], its sufferers continue to be disbelieved, shamed and abandoned by doctors, friends and family. It is
ContinueBeating Chronic Fatigue Syndrome: A Step By Step Guide to Complete Recovery by Dr. Kristina Downing-Orr (2011) A recent entry to the ME/CFS treatment field, ‘Beating Chronic Fatigue Syndrome’ makes a startling promise (‘Complete Recovery; in its title. A psychologist who recovered fully from a severe case of virally induced CFS, Dr. Downing-Orr presents an intriguing blend of body (supplements/drugs)
This paper focuses on Dr. Cheney’s new theory of CFS as elucidated by Carol Sieverling which was based on edited versions of her visits with Dr. Cheney in the fall of 2004. Dr. Cheney is a CFS physician of wide renown with a devoted following among his patients. He was among the first physicians on the scene of the Incline
This paper examines the quantity and focus of CFS research over time and draws some conclusions regarding their implications for CFS patients. Background After CFS burst upon the scene in the mid eighties it didn’t take it long to become a major research topic. The first study PubMed cites on CFS (in the 1980’s) was published in 1987* and by
Posted by Cort Johnson Ottawa Conference Reports III: The Most Expensive Disorder: Clauw on the Fibromyalgia and CFS-ness of Chronic Illness Clauw is a fascinating figure. Clauw comes from the fibromyalgia side but if you don’t have FM don’t think there’s not something here for you as well. Clauw believes a very large group of people with chronic illnesses
ContinuePosted by Cort Johnson The Coalition4ME/CFS – a coalition of US ME/CFS non-profit organizations – has issued a Call to Action on the impending DSM-5 proposal and provided information to assist organizations and patients in writing their own letter to the American Psychiatric Association. The submission period ends June 15th. THE COALITION ANNOUNCEMENT DSM-5 Background: Why this call to action
ContinuePosted by Cort Johnson Children are the most unfortunate recipients of ME/CFS. For many years they were largely ignored subset but the last couple of years have seen a small spurt in studies exploring the costs and course of the illness in adolescents and children with CFS. While prevalence rates are still extremely sketchy a picture of the illness is
ContinuePosted by Cort Johnson Discuss this article on the forums Children are the most unfortunate recipients of ME/CFS. For many years they were largely ignored but the last couple of years have seen a small spurt in studies exploring the costs and course of the illness in adolescents and children with CFS. While prevalence rates are still extremely sketchy a
ContinueDr. Nancy Klimas on Her New Clinic, Pathogens and XMRV s(1/10) Why did you decide to open up a new clinic? You already appear to be one of the busiest persons in the chronic fatigue syndrome world. You were the President of the IACFS/ME, you’re on the CFSAC committee, you’re a CFS and Gulf War Illness (GWI) researcher, you have
An Interview with Marly Siliverman, the Founder of PANDORA, by Cort Johnson In a few years Marly Silverman has built P.A.N.D.O.R.A. into one of the most dynamic CFS patient organizations in the U.S. P.A.N.D.O.R.A. is co-sponsoring the IACFS conference in Florida taking place from Jan 10th-14th and is organizing the big patient conference taking place on January 10th and 11th.
Rik Carlson was a successful small businessman for many years before being struck by a severe case of CFS following a flu-like illness on New Years day in 1995. Two years later he had lost his business. He founded the first state Vermont CFS group, the Vermont CFIDS Association (VT CFIDS Association. In 2003, after six years of work he
Dr. Ken Friedman on Chronic Fatigue Syndrome (ME/CFS) Part III: ‘Just Our Beginning’ Success at the State Level, the Name Change and The Future by Cort Johnson The Name Change The CFSCC initiated a discussion regarding a name change. A Name Change Workgroup was formed and it gathered a lot of input from chronic fatigue syndrome patients and eventually
