Posted by Cort Johnson As the Pandora/Dr. Unger meeting, which was prompted by a Pandora letter signed by several US organizations, is about to occur and as we move into our big advocacy month the Phoenix Rising Board is releasing its own letter to Dr. Unger (and is explaining why it did not participate in the first letter.) ——————————————————————- The Phoenix
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Who is CDC CFS Research Chief Dr. Elizabeth Unger?
Posted by Cort Johnson Dr. Elizabeth Unger, the first new CDC CFS Research Chief in over ten years, has replaced Dr. William Reeves – a forceful and controversial figure who put his own initimable stamp on the CFS research program. The ME/CFS community certainly didn’t want someone from within the CDC to emerge as the research head but now that
ContinueWho is Dr. Elizabeth Unger?
Posted by Cort Johnson Discuss this article on the forums Dr. Elizabeth Unger, the first new CDC CFS Research Chief in over ten years, has replaced Dr. William Reeves – a forceful and controversial figure who put his own initimable stamp on the CFS research program. The ME/CFS community certainly didn’t want someone from within the CDC to emerge as
ContinueThe Obama Promise on Chronic Fatigue Syndrome
Posted by Cort Johnson President Obama on CFS in Reno Robert Miller has been uncanny in his ability to get near prominent public figures and push them for more support with ME/CFS. Despite having a severe case of chronic fatigue syndrome that keeps him from being able to work and participate in many activities, Bob finds a way. Bob has
ContinueThe Big Chase: an extra $525 000 for WPI and/or CAA? It’s up to you.
Posted by Cort Johnson Discuss this article on the forums Help win WPI and/or the CAA $525.000 by voting through Facebook: Simple steps 1. Login to your Facebook account. (Facebook acount is required) 2. From your Facebook page, go to Chase Giving Community page by clicking on the link shown here: https://www.facebook.com/ChaseCommunityGiving 3. “Like” the Chase Giving Community by clicking
ContinueGordon Broderick on ME/CFS: the PANDORA Interview
Posted by Cort Johnson Discuss this article on the forums For a fuller picture of Gordon Broderick and the work he’s doing check out this 2009 Pandora Interview. He explains how he was introduced to the field by Dr. Vernon, his dismay at the level of disability found in ME/CFS and his current work. Intriguingly he’s talking about the work,
ContinueBad Wiring? State of the Knowledge Workshop III: Systems Biology
Posted by Cort Johnson Discuss this article on the forums Stating that there’s been a ‘major revolution in science… brought about by technological advances that have allowed us to look at data generated in the lab in a different way” Dr. Basil Aldadah kicked off the Systems Biology session. These studies tend to use sophisticated analytical techniques to look at
ContinueChase Community Giving Contest Is Back!
Posted by Cort Johnson Discuss this article on the forums Chase Community Giving is at it again. This time they have expanded their Facebook contest to include a round of larger non-profits with have annual operating expenses from 1-5 million dollars. That would includes two ME/CFS organizations in the US; the Whittemore Peterson Institute and the CFIDS Association of America.
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NIH State of Knowledge Workshop: Pathogens II (EBV and Enteroviruses)
Posted by Cort Johnson Chronic Fatigue Syndrome and the Pathophysiology of EBV Infection – Dr. Glaser Dr. Glaser started off by noting that studies have found a strong association between HHV6, EBV and chronic fatigue syndrome (ME/CFS) and then, perhaps in reference to all the attention given to XMRV over the past year and a half, stated that any other
ContinueXMRV Buzz (4/10): Take the Survey,
Posted by Cort Johnson Dr. Deckoff Jones Opens Family Survey – Large scale surveys of illness in CFS families , for some reason, have not been done and yet they could open up a wealth of information about what ME/CFS is by showing what susceptibilities exist in the families. We did a poll on Phoenix Rising and was surprised by
ContinueXMRV at the NIH State Of Knowledge Workshop (SOK): The Mikovits –Coffin Debate
Posted by Cort Johnson (There were some formatting and grammatical errors in the first post; this is a revised submission – my apologies) It wasn’t surprising at all to see things get heated with Dr. Coffin and Dr. Mikovits both up at bat at the State of Knowledge Workshop. The moderator, Dr. Alter, handled his job with humor and flair.
ContinueXMRV at the NIH State Of Knowledge Workshop (SOK): The Mikovits –Coffin Debate
Posted by Cort Johnson Discuss this article on the forums It wasn’t surprising at all to see things get heated with Dr. Coffin and Dr. Mikovits both up at bat at the State of Knowledge Workshop. The moderator, Dr. Alter, handled his job with humor and flair. Stating that he was no King Solomon and was certainly unable to determine
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