Posted by Cort Johnson < strong> Register For Blood Working Group CFS Webinar – Support CFS at the Dept of Health and Human Services – register for the CAA Blood Working Group Seminar The DHHS is where the money is. Whether you love, like, dislike or cringe at the idea of being associated with the CFIDS Association, I encourage you
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A Drug for Chronic Fatigue Syndrome (ME/CFS)? The Rituximab Story
Posted by Cort Johnson Could the first drug for ME/CFS be a chemotherapeutic drug? That would sound like a long shot at best but the fact is a two physicians in Norway are having surprising success with a drug originally developed to treat cancer. Their Story Dr. Fluge and Dr. Olav Mella of Haukeland University Hospital in Bergen, Norway, began
ContinueUse "Powerful Rest" to Improve Your Life
Discuss this article on the forums Written by ggingues (I snagged this from the Lifestyle Management section. This is another example of doing little things that to help improve one’s quality of life. Focused resting is a very different and, I find, much more pleasurable and restful way of resting than simply lying there. It’s not sexy and it’s no
ContinueNK Cells/African Sleeping Sickness,Tyrosine and ME/CFS: A Professor and his Wife
Posted by Cort Johnson Discuss this article on the forums This interesting post came in an email from a parasitology professor who looked at his formerly robust wife sleeping 23 hours a day and, in the face of the considerable confusion, thought of African Sleeping Sickness which depletes the CNS of tyrosine possibly putting the infected person in a state
ContinueXMRV Buzz (12/11) – BWG Finally Reports/CFIDS Webinar/Spain Pt II/Huber Study Soon/Alter Study…
Posted by Cort Johnson Phase II of BWG Study is Complete (Really!) – The CFIDS Association today announced that the oh so important (and time consuming) second section of the BWG’s study focusing on sample preparation and sample storage is complete and that the results will be announced at the BWG’s meeting, just 3 days from now (Dec 14th) (gulp).
ContinueXMRV Buzz – The Buzz From Spain, Dr. Mikovits Branches Out
Posted by Cort Johnson The Buzz From Spain – Cristina Montane relayed a report from Dr. Julia Blanco on the meeting. Dr. Blanco first noted the usual on XMRV: that the problematic methodologies being used impair detection, contamination could be possible for some results, the polytropic MLV findings and the need to assess anti-retroviral effectiveness. ((editorial) With regards to contamination
ContinuePsuedo Article – Please do not read…
Posted by Cort Johnson Discuss this article on the forums BROKEN SPACE – this is a holder for the First Article on the Front Page – which is broken, for some reason, for the moment. Please read the article to the right or below.
ContinueVOTE NOW: Phoenix Rising asks Turnips to support the forums and other ME/CFS organisations
Posted by Cort Johnson Discuss this article on the forums Helen, a member of the PR Forums, made a contest entry for a Netipot. The prizes are big! ($5000, $4000, $3000, $2000 and $1000). Any winnings will be donated to the following 4 ME/CFS causes: 25% to Phoenix Rising 25% to the Whittemore Peterson Institute 25% to the ME/FM Action
ContinueOf Mice and Men: The X-MLV’s and XMRV
Posted by Cort Johnson With no less than four XMLV publications under her belt during the last 14 months Kozak is the premier XMRV evolutionary biologist. Her latest paper is a review of her and others work on murine leukemia retrovirus (MLV) evolution that delineates where contamination could come from and where it could not come from. A Hot Item!
ContinueWashington Post ME/CFS Ad and Press Release are OUT!
Posted by Cort Johnson Discuss this article on the forums [PHP][/PHP] The MWPCA’s press release charting how the ad came about, the need for research, XMRV and Annette Whittemore noting that the NIAID has rejected six grant proposals from the WPI. P.A.N.D.O.R.A. Inc., Rocky Mountain CFS/ME and FM Association, Vermont CFIDS Association, Inc., Wisconsin ME/CFS Association, Inc. and R.E.S.C.I.N.D. and
ContinueFirst ME/CFS Ad Now Running in the Washington Post!
Posted by Cort Johnson ME/CFS is hitting the lawmakers in Washington DC right in the chops today with a provocative half page ad suggesting that everybody, healthy or not, is put at risk when the federal government ignores ME/CFS. The ad has been the fruit of months of work from people with ME/CFS, the MWPCA and PANDORA. The MWPCA has
ContinueXMRV Buzz (12/3) – correction
Posted by Cort Johnson Some information on the former post was incorrect – here are the corrected sections. The Red Cross Ban leaves the FDA and the American Association of Blood Banks (AABB) looking a little isolated, what with Canada, Australia the UK and now the biggest single blood donation organization in the US, all turning their thumbs down on
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