Posted by Cort Johnson Just fours days after the editors of Science took it upon themselves to retract the 2008 Science paper, Lo/Alter, the authors of the FDA study at one time championed as proof that a family of XMRV-like viruses was present in ME/CFS, have retracted their PNAS findings as well. In their conclusion to be published next week
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Ottawa III: The Most Expensive Disorder Facing the Medical Profession – Clauw on FM and CFS
Posted by Cort Johnson Ottawa Conference Reports III: The Most Expensive Disorder: Clauw on the Fibromyalgia and CFS-ness of Chronic Illness Clauw is a fascinating figure. Clauw comes from the fibromyalgia side but if you don’t have FM don’t think there’s not something here for you as well. Clauw believes a very large group of people with chronic illnesses
Continue“All in the Family”: A Real Disorder After All – the Albright CFS Heredity Study
Posted by Cort Johnson (Evidence for a heritable predisposition to Chronic Fatigue Syndrome. Albright F, Light K, Light A, Bateman L, Cannon-Albright LA. BMC Neurol. 2011 May 27;11:62. Pharmacotherapy Outcomes Research Center, Department of Pharmacotherapy, College of Pharmacy, University of Utah, USA. frederick.albright@pharm.utah.edu) The ‘wastebasket diagnosis’ hypothesis has bedeviled the chronic fatigue syndrome field for years. That hypothesis subscribes to the idea that ME/CFS is simply a dumping
Continueerr..Correction! WPI Wins Lawsuit/Science Retracts XMRV Paper/Mikovits Back to Work on XMRV
Posted by Cort Johnson (My apologies! (Another CFS moment…) The last blog contained a draft on the first story – not the completed version. Thanks for your patience….) When it rains it pours. Events regarding XMRV, Dr. Mikovits and the WPI have come hot and heavy during the last week. WPI’s Civil Lawsuit Against Dr. Mikovits – First some background. Dr.
ContinueIt’s Just the Weather, Baby! Reading Toni Bernhardt’s ‘How to be Sick’ #3
Posted by Cort Johnson Chapter 4 of How to Be Sick – The Universal Law of Impermanence There’s just no getting around universal laws. They’re like gravity – you cannot like gravity, you can protest against gravity, you can pretend gravity doesn’t exist but as soon as you roll out of bed there it is – gravity. The Buddhist law
ContinueDr. Klimas Talks – on her new CFS Research Institute at Nova Southeastern University
Posted by Cort Johnson I can promise we will be providing cutting edge research and care, and educating providers like never before. Dr. Nancy Klimas Dr. Klimas recently left the University of Miami to head up a new Institute dedicated to researching chronic fatigue syndrome (ME/CFS) and Gulf War Illness at Nova Southeastern University. Dr. Klimas worked at the Univ.
ContinueMom’s on a Mission….. To Support ME/CFS Research
Discuss this article on the forums Only two days to go in the ‘Mom’s on a Mission’ Contest to win 5K for NIDA to provide research funds for ME/CFS. The newest ME/CFS Foundation in the block, NIDA, is raising funds for one of the newest (one of the busiest) CFS research efforts; Dr. Peterson’s Simmaron Foundation. The Simmaron Foundation is
ContinuePhoenix Rising: Its Promise and a Link That Works :)
Posted by Cort Johnson Our apologies for hitting you with two Support Phoenix Rising letters in one day but we discovered that a crucial link -the one time donation link – in the first letter did not work. This time it does. Thanks for your patience and understanding. Please invest in Phoenix Rising’s commitment to rigorous reporting and innovative web solutions
ContinuePhoenix Rising: Its Promise and Future
Posted by Cort Johnson ME/CFS can be isolating but people with ME/CFS do not have to be isolated and Phoenix Rising is a big reason why. If John in Los Angeles wants to get the latest info on GcMAf; if Pat in Miami needs to get the latest research news, if Mary in the UK just wants to chat –
ContinueInternational Suicide Prevention WIKI
Posted by Cort Johnson Discuss this article on the forums This site provides information on Suicide Prevention Centers around the world. Its an amazing resource….. Click on this link to go to the site and get telephone numbers, email addresses and website info on Suicide Prevention centers.
ContinueDr. Nancy Klimas Forms Neuro-Immune Institute on ME/CFS at Nova Southeastern University
Posted by Cort Johnson Last week a notice from the University of Miami stating that after 27 years Dr. Klimas’s doors at the University would close sent something of a shock wave through the ME/CFS community. The idea that a significant CFS researcher, physician and advocate had perhaps lost her academic base was more than disturbing – but that announcement
ContinueCorinne at Dr. Peterson #5: “Tardiness, Flexibility and Attitude”
Corinne’s fifth blog of her visits to Dr. Peterson is her most comprehensive yet. First, an improving Corinne gives a summary of her work to date with Dr. P, then we get a blow by blow of her visit, and lastly the ‘Queen of Questions’ hits up Dr. Peterson with her long list of questions, and as always, he responds.
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