Posted by Cort Johnson The CFIDS Association of America (CAA) released a list $2 million dollars worth of new CAA funded studies last week. There’s something of a ‘gestalt’ to a CAA study; the CAA likes to fund studies that gather enormous amounts of information and then use data mining techniques to ferret out new patterns, they like to ‘smush’ researchers
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Posted by Cort Johnson Virtually every ME/CFS research and non-profit is in the same fix – they’re big on ideas and short on money. The CAA, of course, has the same problem… even though, arguably, the needs in ME/CFS are larger than almost any other disorder, next to the big medical non-profits like the Susan G. Komen Foundation for breast cancer,
ContinuePosted by Cort Johnson The CAA – a Timeline – Events and Finances of the Past Ten Years. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association Event Timeline.
ContinuePosted by Cort Johnson Check out an overview of the CAA’s activities over the turbulent first decade of the 21st century…their hits, their misses, their ups, their downs….. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association – the last Ten Years.
ContinuePosted by Cort Johnson Check out the comprehensive CFIDS Association Interview as former Chairman of the Board Jennifer Spotila talks about the organization past and future, its tangled association with the CDC, why it made some the decisions it did and more. via Chronic Fatigue Syndrome ME/CFS News From Phoenix Rising – CFIDS Association Interview with Jennifer Spotila.
ContinuePosted by Cort Johnson < strong> Register For Blood Working Group CFS Webinar – Support CFS at the Dept of Health and Human Services – register for the CAA Blood Working Group Seminar The DHHS is where the money is. Whether you love, like, dislike or cringe at the idea of being associated with the CFIDS Association, I encourage you
ContinuePosted by Cort Johnson The CFIDS Association started off what’s going to be an exciting week for XMRV with a CFIDLINKs devoted to asking the experts about XMRV. Fittingly enough Dr. Lo and Alter were first. After noting that both groups, the Alter/Lo and WPI/NCI/Cleveland Clinic groups had found a similar ‘strong association’ between murine Leukemia retroviruses (in one case
ContinuePosted by Cort Johnson The New York Times lead article today “Sharing of Data Leads to Progress on Alzheimer’s”. described how a bold new type of research effort paid off big time in Alzheimer’s. All it took to succeed was for researchers to make a commitment to work together, share and collaborate…. nothing much really – just a commitment to
ContinuePosted by Cort Johnson Dr. Racaniello and Dr. Bateman talked XMRV (mostly) at the CFID’S Association Webinar on Wednesday. DR. RACANIELLO gave us a bird’s eye of retroviruses. Right now there are two models for human infectious retroviruses; HIV, which replicates madly in immune cells and sends millions of virions into the blood to infect more cells and HTLV-1, which
ContinuePosted by Cort Johnson The odds have always been against the researchers with the guts or commitment to take ME/CFS on. With it’s unfortunate name, vague definition and complicated, multi-systemic nature it’s gotten little respect and even less funding. Everybody knows the statistics – last in the NIH in funding….$20 billion in economic losses and easily, easily the lowest dollar
ContinuePosted by Cort Johnson As expected Dr. Vernon, the Scientific Director of the CFIDS Association, delivered a rather comprehensive overview of the latest XMRV study in the Retrovirology journal. Dr. Vernon spent some time making clear who just who did this study; it was basically the best of UK retroviral researchers (one ‘world-renowned’) plus top ME/CFS UK researchers with long
ContinuePosted by Cort Johnson In a recent article on RJC.com Dr. Mikovits came out swinging. Fights between researchers can get nasty but its probably rare that they veer into this kind of territory. After suggesting that the Imperial College group purposefully tried not to find the virus (!) Dr. Mikovits referred to the fact that the paper was paid for,
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