Posted by Cort Johnson (There were some formatting and grammatical errors in the first post; this is a revised submission – my apologies) It wasn’t surprising at all to see things get heated with Dr. Coffin and Dr. Mikovits both up at bat at the State of Knowledge Workshop. The moderator, Dr. Alter, handled his job with humor and flair.
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[LiveBlog] NIH ME/CFS State of Knowledge Workshop Coverage (Day Two, 8 Apr 2011)
Posted by Cort Johnson We’re going to try something new, live coverage of the workshop. Since this is last minute, we need volunteers to help cover the event. Let us know if you’d like to help with a comment here or via reply in the forum article that I’m posting. You can watch the event here or in the forums.
Continue[Liveblog] NIH ME/CFS State of Knowledge Workshop (Day One, 7 Apr 2011)
Posted by Cort Johnson Here’s a slightly ‘kludged’ transcript of Day one of the NIH ME/CFS State of Knowledge Workshop. Some off-topic chat posts have been removed for clarity, but no remaining lines of the transcript have been altered. NIH SoK Workshop Coverage (Day 1, 7 Apr 2011)
ContinueState of the Knowledge Workshop / 2010 Research Overviews
Posted by Cort Johnson The State of the Knowledge Workshop is here and it’s a good one. A hearty congratulations to Pat Fero, Mary Schweitzer, Ken Friedman, Dr. Jason, Dr. Klimas, Dr. Vernon and Dennis Mangan for what they’ve produced. The last NIH Workshop/Conference of this sort was the Neuroimmune Conference of eight years ago and was filled with NIH
ContinueComedown at CROI: XMRV and CFS at the Conference on Retroviruses and Opportunistic Infections
Posted by Cort Johnson A New Center – Much research and discussion now is not centered around XMRV but around a prostate cancer cell line called 22RV1. More than anything else this cell line that is what is causing problems for XMRV. The 22RV1 cell line was created in 1999 in response to a need to study prostate cancer –
ContinueChronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association Event Timeline
Posted by Cort Johnson The CAA – a Timeline – Events and Finances of the Past Ten Years. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association Event Timeline.
ContinueChronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association – the last Ten Years
Posted by Cort Johnson Check out an overview of the CAA’s activities over the turbulent first decade of the 21st century…their hits, their misses, their ups, their downs….. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association – the last Ten Years.
ContinueChronic Fatigue Syndrome ME/CFS News From Phoenix Rising – CFIDS Association Interview with …
Posted by Cort Johnson Check out the comprehensive CFIDS Association Interview as former Chairman of the Board Jennifer Spotila talks about the organization past and future, its tangled association with the CDC, why it made some the decisions it did and more. via Chronic Fatigue Syndrome ME/CFS News From Phoenix Rising – CFIDS Association Interview with Jennifer Spotila.
ContinueMore Community Outreach from the NIH: Mangan Creates Listserv to Communicate with ME/CFS Community
Posted by Cort Johnson Talk about reaching out and communicatingup up up up up up up up up. Dennis Mangan, the leader of the CFS Working Group at the NIH, has set up a ListServe that will automatically send you information from the NIH on what their ME/CFS activities. Bit by bit Dennis is transforming the way the NIH operates
ContinueWPI Responds to Concerns About Contamination
Posted by Cort Johnson The WPI response to the Papers Published in Retrovirology The Lombardi et al. and Lo et al. studies were done using four different methods of detection. They were not simply PCR experiments, as were the studies by McClure et al. and others who have recently reported their difficulties with contamination. Experienced researchers such as Mikovits, Lombardi,
ContinueDHHS Alert – Attend CAA Blood Working Group Seminar
Posted by Cort Johnson < strong> Register For Blood Working Group CFS Webinar – Support CFS at the Dept of Health and Human Services – register for the CAA Blood Working Group Seminar The DHHS is where the money is. Whether you love, like, dislike or cringe at the idea of being associated with the CFIDS Association, I encourage you
ContinueThe Stars Begin to Align at the NIH: A CFS Review Panel…. For CFS!
Posted by Cort Johnson A Head-Splitter – Of all the problems at the NIH the makeup of the panel that reviews and scores ME/CFS grants – called the CFS SEP – may have been the most head-splittingly frustrating. No subject is guaranteed to raise blood pressure levels more quickly and perhaps, no other group has been more effective at throttling
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