Posted by Cort Johnson Website Down (Again…sigh) – The website has been down for at least a week but hopefully we’re back up for good and in a new format. The website will changing quite a bit over time as we slowly create a new version of Phoenix Rising. Fighting for A Cause Dr. Mikovits and the search for XMRV was
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Chronic fatigue syndrome (ME/CFS) Research
Straight Talk From Dr. Montoya: the Stanford Hospital CFS Lecture (March 2011)
Posted by Cort Johnson Dr. Montoya at Stanford Hospital on CFS March, 2011This definitely wasn’t an ‘get acquainted with CFS’ talk. There was no boring scholarly introduction to CFS (“Chronic fatigue syndrome effects blah, blah, blah….has x number of symptoms….blah, blah…..)…Dr. Montoya was clearly trying to wake people up. Calling ME/CFS one of the most ‘mis-perceived’ illnesses in medicine, Montoya
ContinueComedown at CROI: XMRV and CFS at the Conference on Retroviruses and Opportunistic Infections
Posted by Cort Johnson A New Center – Much research and discussion now is not centered around XMRV but around a prostate cancer cell line called 22RV1. More than anything else this cell line that is what is causing problems for XMRV. The 22RV1 cell line was created in 1999 in response to a need to study prostate cancer –
ContinueXMRV Buzz! The CFS/XMRV News Page
Posted by Cort Johnson March 6th The WPI’s response to CROI was “It is interesting that infectious XMRV is still found only in human cells and not in mouse cells or mice. In addition, these data have little to say about XMRV infection in humans.” In an email Dr. Mikovits stated “There is still not one piece of evidence of
ContinueGuilty!…. By Association? Taking Our Measure
Posted by Cort Johnson Dr. Klimas was raked over the coals recently for being a co-author of a study on stress management that brought symptomatic relief to some people with CFS. In the upset of the moment the rest of Dr. Klimas’s work – her uncovering of the central immune dysfunction in ME/CFS (NK cell dysfunction), her numerous research papers,
ContinueA Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No …
Posted by Cort Johnson The biggest and the baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program alone was hundreds of pages
ContinueEmpty Sella Syndrome and CFS: A Proposed Patient Study
Posted by Cort Johnson Empty Sella Syndrome: A Proposed CFS Patient Study – We propose a study to possibly characterize the first anatomical abnormality in CFS – empty sella. Adin suggested this study based on his MRI records showing that a filled sella early in the disorder and an empty sella later on. I know of another person who’s has
ContinueXMRV Buzz – IAP/Malderelli/Indy Star Article/Spinal Fluid Comes Up Empty
Posted by Cort Johnson Malderelli Study – the Malderelli XMRV retest study has elicited a ‘little’ controversy…:). Dr. Malderelli, in a discussion with a patient, said he was collaborating with the WPI. Dr. Mikovits, however, in several emails posted on the internet, has said neither the WPI nor Drs. Alter/Lo are or ever have collaborated with Dr. Malderelli. Dr. Mikovits
ContinueChronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFS NIH Grant Panel (SEP) Feb 2010
Posted by Cort Johnson Back to the Past – The CFS SEP Panel reverts. Seeing Dr’s Klimas, Ruscetti, Fletcher, Broderick names on the last NIH grant review panel for CFS was an almost giddy experience after watching years of dental and pain researchers sign off on (and usually decline) CFS grants. Things have changed. Some CFS researchers do remain but
ContinueXMRV Buzz Jan 18th and 20th
Posted by Cort Johnson Dr. Mikovits Talks – Part II – we now have two accounts of Dr. Mikovits talk. Lannie has finished up her account and Paula Carnes has provided her overview as well. As often happens both contain bits the other does not. Paula reported Dr. Mikovits said that 30% of adolescents who have tested positive for XMRV will go
Continue2011 – the Year Ahead for ME/CFS
Posted by Cort Johnson Is 2011 going to be a big year? Yes it is! Some big issues are being decided. XMRV – XMRV has taken a longer than anyone expected but expect some real answers this year with important studies finishing up. * BWG – hopefully news in 6 months * Lipkin – may take up to a year
ContinueOverview of Australian ME/CFS Science Conference by Dr. Rosamund Vallings
Posted by Cort Johnson Australian CFS Science Symposium Overview by Rosamund Vallings This is just a fantastic review by Dr. Vallings of a really exciting Conference Down Under. Lots of new research much of it directed at the immune system and the central nervous system. There are studies on the brain stem, autopsies, CNS inflammation, NPY, neurodegeneration….. Notice that the
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