Category: Miscellaneous

Posted by Cort Johnson Discuss this article on the forums Written by Cort The Phoenix Rising Forums are moving :Retro eek:….to a new Forum package called Xenforo. The move did not come easy (particularly for me); VBulletin has been good to us but after taking a close look at both packages it became clear which way we should go…Xenforo is

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Posted by Cort Johnson Discuss this article on the forums Background The theme of this year is expansion, not contraction as one might expect after the biggest finding in CFS history (XMRV) didn’t pan out. With XMRV drawing more attention than ever to this disease the ME/CFS research community emerged in better shape with more new projects and more new

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Posted by Cort Johnson Discuss this article on the forums Written by alex3619 Thanks to Alex for allowing us to post a thought-provoking blog suggesting that focusing a bit less energy on righteous indignation and bit more energy on undertaking rigorous examinations of positions and studies might make ME/CFS advocacy a lot more effective. We spend of lot of energy

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Discuss this article on the forums Only two days to go in the ‘Mom’s on a Mission’ Contest to win 5K for NIDA to provide research funds for ME/CFS. The newest ME/CFS Foundation in the block, NIDA, is raising funds for one of the newest (one of the busiest) CFS research efforts; Dr. Peterson’s Simmaron Foundation. The Simmaron Foundation is

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Posted by Cort Johnson Discuss this article on the forums This site provides information on Suicide Prevention Centers around the world. Its an amazing resource….. Click on this link to go to the site and get telephone numbers, email addresses and website info on Suicide Prevention centers.

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Posted by Cort Johnson Discuss this article on the forums The Chase Community Giving Contest is virtually the only way for penny-poor CFS non-profits to come up with easy cash. With four days left in the contest two non-profits – the New Jersey CFS Association (#93) and the Enterovirus Foundation (#81) – are hanging on by the skin of their

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Posted by Cort Johnson Discuss this article on the forums Wanda Jones made a difference for the CFS Community at the federal advisory committee for CFS (CFSAC). The NIH liason (FDO) to the committee Wanda was right there in the middle of things when XMRV came on the scene. Sometimes fiery, sometimes surprisingly funny, Wanda was the rock the CFSAC

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Posted by Cort Johnson Discuss this article on the forums Somethings gotta be done; money, lots of it was spent on XMRV but the budget for the rest of CFS is still in the tank and now we are faced with what we worried about what might happen if XMRV didn’t turn out; the rest of the medical community going

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Discuss this article on the forums (In what has become easily the best documented interaction of any patient with Dr. Dan Peterson, Corrine returns to see him for visit #4. Check out Corrines other blogs here as she brings up you close and personal with one of the most respected ME/CFS physicians in the US. Check out the beginning of

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Posted by Cort Johnson Discuss this article on the forums Donations are crucial to our ability to provide this place for you all. Phoenix Rising is a registered 501(c)(3) non-profit organization and your donations are deductible to the full extent of the law. Although our moderators, administrators, and systems engineers (all of whom have ME/CFS themselves) give their time and

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Posted by Cort Johnson Discuss this article on the forums One of the biggest questions awaiting the new definition for myalgic encephalomyelitis (ICC) is who fits it vs who fits the standard definition for CFS. The ICC authors believe that people who meet their criteria may have a different sort of illness than people who meet the Fukuda definition but

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Posted by Cort Johnson Discuss this article on the forums It’s rare that we actually get a chance to physically make a difference in someone’s life but with Pandora’s project we actually could. Poor sleep is endemic in the ME community and has been shown to cause increased pain, fatigue, poor concentration, etc; even in healthy people; in short –

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