Posted by Cort Johnson Discuss this article on the forums Most states don’t have a statewide CFS organization let alone one that puts on conferences, writes comprehensive CFS manuals, provides high school and college scholarships, advises school on pediatric issues and more. In short, the ME/CFS patients in New Jersey have somehow managed to create a viable, proactive organization that
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I Swear, It’s Nothing Personal!
Discuss this article on the forums Written by Kelvin Lord “My mild-mannered, sweet, school-teacher wife just lit into me with some language that would make a sailor blush!” R.S. said, shaking his head in dismay. He was referring to his wife Leona, a fellow patient here at the clinic getting Ampligen, and he was beside himself, still stinging from the
ContinueDr. Mikovits at the IACFS/ME
Posted by Cort Johnson The IACFS/ME did a very interesting thing by inviting Dr. Mikovits to answer questions from their members. Dr. Mikovits must have known she was going to get some tough questions and she did. The Tricky Immune System – The first question illuminated what a complex process tinkering with the immune system is. Andrew Bokelman essentially asked
ContinueHow to Answer “What’s Wrong With You?”
Discuss this article on the forums Written by Kelvin Lord We’ve all heard the question in one form or another. It usually comes at a time when you look better than usual, or feel worse than usual. But either way, it makes you feel the same as usual. “What exactly is wrong with you?” they ask, innocently…not knowing that their
ContinueAn MD on the Lightning Process
Posted by Cort Johnson Discuss this article on the forums Dr. Frivold is the husband of Berit Frivold, who’s recovery from ME/CFS using the Lightning Process, was posted a month or so ago. Dr. Frivold, is naturally very happy that his wife has recovered and, after reading the discussion on Berit’s recovery, sent me these observations. I recognize this is
ContinueANGER and Mind Training
Discuss this article on the forums Written by Victoria What are we here for? Perhaps we are simply here for the opportunity to become so happy that we no longer care what we are here for! (wrote my Astrologer today…..). How many people are genuinely happy? I don’t mean happy because they have material possessions or the perfect wife/husband/partner. I’m
ContinuePhoenix Rising YouTube Video Thread
Posted by Cort Johnson Discuss this article on the forums Written by teejkay The Phoenix Rising ME/CFS YouTube video is up. Thank you very much to everyone who sent in your wonderful pictures and a big thank you to Cinderkeys for letting us use your awesome song, Everybody Knows About Me. Thank you Dreambirdie for your tips and support. teej
ContinueFive Facts About ME/CFS: Socking It To ME/CFS
Posted by Cort Johnson Discuss this article on the forums Written by creekfeet by Creekfeet If I could tell the world just five facts about Myalgic Encephalomyelitis (ME/cfs) I might choose these. ME/CFS… • causes more functional impairment than diabetes, heart failure or kidney disease. • creates a level of disability comparable to MS, chemotherapy or the final stages of
ContinueThird Times a Charm: How I Learned to Pace Myself
Discuss this article on the forums By Rosemary Rowlands Posted with permission from the CFIDS and Fibromyalgia Self-Help Website I’ve had CFS for more than 20 years. My health declined gradually and was very poor by a few years ago. Since then, however, using pacing ideas from the self-help program and other sources, I’ve made steady progress and my life
ContinueTaking Back the CFSAC
Posted by Cort Johnson Discuss this article on the forums Written by Cort We saw the power of the Federal Advisory Committee on CFS (CFSAC) last October when Annette Whittemore, Dr. Peterson, Dr. Coffin and others presented live testimony on video on XMRV. The Committee is one of the only places where federal officials can compelled to give public testimony
ContinueA Few Paleo Thoughts by Lisa
Discuss this article on the forums Written by Lisa (picture supplied by Cort) Tuesday will be exactly four months since we made the switch to a Paleo lifestyle. I can still hardly believe how much meat we consume each week because I have never in my life been a huge meat eater. The previous 12.5 years of vegetarianism, over a
ContinueXMRV and ME/CFS: the WPI Throws the Gauntlet Down
Posted by Cort Johnson Written by Cort Yes, the WPI has been frustrated, and sometimes vocally so, regarding the inability of the three XMRV studies to validate the original Science study results. Yesterday, in a surprise announcement Annette Whittemore threw the gauntlet down, so to speak. For sure she did it politely but her proposal that Dr. McClure, one of
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