The inability of anyone other than the WPI (and the NCI and Cleveland Clinic) to find XMRV is mysterious. In the face of three failed attempts to find any trace of XMRV in several hundred chronic fatigue syndrome patients questions are, of course, growing about the WPI’s find. Yes, questions have been raised about the efficacy of each of the
ContinueCategory: Miscellaneous
Good Times, Clarithomycin, Spring, Good Friends & Family
Discuss this article on the forums Written by flybro By Flybro I’m now on day 14 or 15, of feeling really well. Back in January I started to take 50mg of clarithomycin twice a day. My partner crushes a 500mg tab and fills 10 small capsules with equal amounts, and increases the dose to my ‘wellness/symptoms’, the most it is
ContinueBeing "Pushy" with Your Doctor
Discuss this article on the forums Written by Kelvin Lord Kelvin’s Continuing Blog on his Ampligen and other Treatments My blog today includes my top 5 Treatment Recommendations outside of Ampligen – things you may need to “push” your Doctor to give you. Someone asked me recently: “But what can I do if I am not on Ampligen? My Doctor
ContinueLiving Outside the Camp
Discuss this article on the forums Written by Jody It is a fearsome thing to find oneself living outside the camp. As the sickness of Chronic Fatigue Syndrome causes the circle of life to shrink, as the chronic element reduces our contacts with other people, we find ourselves moving (or being moved) further and further away from the campfire. And
ContinueSome Bugs in the Forum Following A Recent ‘Upgrade’
Posted by Cort Johnson A recent security issue has forced us to upgrade to a new version of Vbulletin. This brings along lot’s of problems at the moment: being logged out constantly home page messed up trouble with PM’s Cort is currently communicating with VBulletin to solve these problems. This can take days, but we don’t want to close down
ContinueFeels Like Victory! (the Ampligen Chronicles Trt #12 )
Discuss this article on the forums Written by Kelvin Lord Treatment #12 : by Kelvin Lord I hope this doesn’t gross you out, but yesterday I ran to the toilet 9 times and had nothing to show for it. Yes, another surprise, yet not altogether bad result of my Ampligen treatment. But one I actually was happy about. Let me
ContinueEven a 1% Change Makes a Difference (Ampligen Chronicles Trt #11)
Discuss this article on the forums Written by Kelvin Lord Treatment #11 by Kelvin Lord I made three very small changes in my protocol today, and although I really can’t determine scientifically their effect, experientially I can say that while all three were very minor, percentage-wise, collectively they added up to a big difference in how I felt. As usual,
ContinueFighting the Insensitivity of Others: Ampligen Chronicles ( Trt #10)
Discuss this article on the forums Written by Kelvin Lord By Kelvin Lord Treatment #10 Of all the things we have to deal with internally fighting this hideous disease, to me, the things that we fight externally are sometimes more debilitating. This week I came face to face with one of the biggest enemies to recovery, the ignorance and insensitivity
ContinueMikovits-Cheney on XMRV and CFS Transcript – Pt II (Feb 2010)
Posted by Cort Johnson Written by FernRhizome Cheney/Mikovits – February 20, 2010 Part III, 20:00 min – 30:00 min transcribed by Lily Cheney: If it were, we’d see a lot more than 10 million Americans infected with it, so there must be something that’s inhibiting the effective transmission of that agent given those numbers. Ten million versus let’s say one
ContinueDr. Mikovits – Dr. Cheney on XMRV and CFS Transcript (2/20/10), Part 1
Posted by Cort Johnson Discuss this article on the forums Written by FernRhizome (transcribed by Kim) Cheney…in molecular biology from George Washington University and did her PhD work in the area of retrovirology, specifically how retroviruses, and specifically HIV, infect human monocytes. She studied under the legendary Dr. Frank Ruscetti at NCI, who is considered to be the father of
ContinueMy Peter Falk View of Ampligen by Kelvin Lord
Discuss this article on the forums Written by Kelvin Lord (Kelvin continues his evocative portrayal of his Ampligen treatment and his experiences with ME/CFS. Check his blog for more entries) Treatment #7 I don’t want to say that getting a needle stuck in your arm is getting routine, but a nice short summary of this morning’s Ampligen infusion would simply
ContinueDr Vernon on XMRV UK CFS Study #II
Posted by Cort Johnson Discuss this article on the forums Written by Cort As expected Dr. Vernon delivered a rather comprehensive overview of the latest XMRV study in the Retrovirology journal. Dr. Vernon spent some time making clear who just who did this study; it was basically the best of UK retroviral researchers (one ‘world-renowned’) plus top ME/CFS UK researchers
Continue