Posted by Cort Johnson Discuss this article on the forums Chase Community Giving is at it again. This time they have expanded their Facebook contest to include a round of larger non-profits with have annual operating expenses from 1-5 million dollars. That would includes two ME/CFS organizations in the US; the Whittemore Peterson Institute and the CFIDS Association of America.
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XMRV Buzz (4/10): Take the Survey,
Posted by Cort Johnson Dr. Deckoff Jones Opens Family Survey – Large scale surveys of illness in CFS families , for some reason, have not been done and yet they could open up a wealth of information about what ME/CFS is by showing what susceptibilities exist in the families. We did a poll on Phoenix Rising and was surprised by
ContinueState of the Knowledge Workshop / 2010 Research Overviews
Posted by Cort Johnson The State of the Knowledge Workshop is here and it’s a good one. A hearty congratulations to Pat Fero, Mary Schweitzer, Ken Friedman, Dr. Jason, Dr. Klimas, Dr. Vernon and Dennis Mangan for what they’ve produced. The last NIH Workshop/Conference of this sort was the Neuroimmune Conference of eight years ago and was filled with NIH
ContinueFrom the PCR Side: the Cooperative Diagnostics XMRV Interview with Dr. Brent Satterfield
Posted by Cort Johnson This long interview may be difficult for some. In it Dr. Satterfield presents evidence which he believes suggests that XMRV will probably not work out. We’ve had this interview sitting in our laps for about 2 1/12 weeks during which we tried to get a response from the WPI . They, however, are too busy and
Continue[Phoenix Rising Newsletter] Comedown for XMRV at CROI/Hope for Ampligen/CFS Hits the Big Time…
Posted by Cort Johnson Welcome to the first Phoenix Rising newsletter with our new newsletter using the new Amazon ‘Simple’ Mail Service! CROI! — XMRV showed up in spades in the first major Retrovirology conference of the year, CROI (Conference on Retroviruses and Opportunistic Infections), occurring in Boston. The big news came from a study which suggested XMRV may have
ContinuePhoenix Rising – An ME/CFS/FM Newsletter by Cort Johnson (Jan 2006)
Phoenix Rising – An ME/CFS/FM Newsletter by Cort Johnson (Jan 2006) Phoenix Rising is a monthly newsletter committed to elucidating current CFS research, describing important events, telling patient stories, suggesting alternate treatments for CFS patients, etc. Please contribute to Phoenix Rising. CONTENTS NEWS –A Goodbye To Jason Breckenridge/New Ampligen Trial / New U.K. CFS Website and Newsletter / AACFS
PHOENIX RISING: A CFS/ME Newsletter By Cort Johnson (December, 2005)
PHOENIX RISING: A CFS/ME Newsletter By Cort Johnson (December, 2005) (Please send submissions, comments and/or clarifications to Phoenixcfs@yahoo.com) Phoenix Rising is a monthly newsletter committed to elucidating CFS research, describing important events, telling patient stories, suggesting alternate treatments for CFS patients, etc. Please contribute to Phoenix Rising. CONTENTS NEWS – Spence Lecture on CFS / ME Conference in London announced
An Interview with Marly Siliverman, the Founder of PANDORA, by Cort Johnson
An Interview with Marly Siliverman, the Founder of PANDORA, by Cort Johnson In a few years Marly Silverman has built P.A.N.D.O.R.A. into one of the most dynamic CFS patient organizations in the U.S. P.A.N.D.O.R.A. is co-sponsoring the IACFS conference in Florida taking place from Jan 10th-14th and is organizing the big patient conference taking place on January 10th and 11th.
An Interview with Pat Fero of the Wisconsin Chronic Fatigue Syndrome Association
An Interview with Pat Fero of the Wisconsin Chronic Fatigue Syndrome Association The CFS/FM support groups perform a lot of vital functions for CFS/FM patients; they provide advice, physician and legal referrals, emotional support and they advocate for change usually on a bare bones budget. Often run by people who themselves have CFS/FM they are the bread and butter
Rebecca Artman: CFS Advocate/CFSAC Member by Cort Johnson (2008)
Rebecca Artman: CFS Advocate/CFSAC Member by Cort Johnson (2008) This interview took place in 2008 How did your story with chronic fatigue syndrome (ME/CFS) start? I was working for a non-profit organization I went home at lunch to do the laundry. When I got back to work it took me ten minutes to get out of the car. I barely
UK "Policy Change Now" Campaign Underway
Posted by Cort Johnson Discuss this article on the forums Written by sproggle I’d really appreciate it if members of this forum could get behind this campaign, we need as many participants as possible to give us the best chance of receiving a meaningful response and not a useless standard reply! The full details, which I have posted below, can
ContinueCFIDS Association Of America Interview with Jennifer Spotila
Posted by Cort Johnson Discuss this article on the forums Jennifer Spotila was Chairman of the Board of the CFIDS Association of America from 2008-2009 and is a Board member today. Companion Articles CFIDS Association: the Last Ten Years – An Overview CFIDS Association: a 2000-2010 Timeline Can you briefly tell us your story with chronic fatigue syndrome (ME/CFS)? Jennie’s
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