Posted by Cort Johnson Dan Moricoli is doing some great stuff at the ME/CFS Community Center. (Look at the Scientific Committee members!) Check out this video of an Olympic Champion espousing the need for more support. Olympic Champion Laura Kraut on ME/CFS and the ME/CFS Pocket Money Research Fund. The ME/CFS Champions Campaign seeks to raise public awareness of ME/CFS,
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Phoenix Rising and Rising….PR Is Official!
Posted by Cort Johnson Phoenix Rising is an officially designated 501 3C non-profit which means that donations are tax deductable, and, of course, we’d love to take some off your hands :) Phoenix Rising is currently engaged in several exciting projects; two treatment and physician review projects to help patients better determine which treatments to take and which doctors to
ContinueVOTE NOW: Phoenix Rising asks Turnips to support the forums and other ME/CFS organisations
Posted by Cort Johnson Discuss this article on the forums Helen, a member of the PR Forums, made a contest entry for a Netipot. The prizes are big! ($5000, $4000, $3000, $2000 and $1000). Any winnings will be donated to the following 4 ME/CFS causes: 25% to Phoenix Rising 25% to the Whittemore Peterson Institute 25% to the ME/FM Action
ContinueWashington Post ME/CFS Ad and Press Release are OUT!
Posted by Cort Johnson Discuss this article on the forums [PHP][/PHP] The MWPCA’s press release charting how the ad came about, the need for research, XMRV and Annette Whittemore noting that the NIAID has rejected six grant proposals from the WPI. P.A.N.D.O.R.A. Inc., Rocky Mountain CFS/ME and FM Association, Vermont CFIDS Association, Inc., Wisconsin ME/CFS Association, Inc. and R.E.S.C.I.N.D. and
ContinueSIX Advertisement Samples for the Washington Post – Review & Comment by 31 Oct!
Posted by Cort Johnson Discuss this article on the forums Written by muffin The Half Page Ads for ME/CFS in the Washington Post Are Ready for Your Feedback Please go here to check them out: https://mcwpa.org/?p=166 Go here to give your feedback: https://www.forum.mcwpa.org/viewforum…. Look under “Print Advertisements” and then look for “Ad Samples.” If you have not registered, you will
ContinueLet’s do it again!
Posted by Cort Johnson Discuss this article on the forums American Express is offering $200,000 to five different charities every three months. People will be able to vote for their favorite charities once a week. The next three-month round of voting starts on Jan. 1, 2011, but they are accepting nominations now. To be eligible, a non-profit organization must be
ContinueThe Times They Are a Changing – CAA Nominates Distinguished Researchers To CFSAC…
Posted by Cort Johnson Discuss this article on the forums ‘Names’ Step Out – A key, key need for 25 years has been to get distinguished researchers, ‘names’, interested in ME/CFS. We’ve always had good, committed researchers but rarely have we had people who could be counted as ‘opinion-makers’ or leaders. That is changing – quickly. The WPI’s XMRV finding
ContinueA Time to Act!
Posted by Cort Johnson “A Time to Every Purpose Under the Heaven” Ecclesiates says there is a “A time to every purpose under the heaven”. I suggest that our time is now. ME/CFS has been ignored and kicked to the side of the road for decades. Twenty-five years later – long after it has been shown to afflict at least
ContinueThe CFIDS Association XMRV Webinar with Dr. Racaniello and Dr. Bateman
Posted by Cort Johnson Dr. Racaniello and Dr. Bateman talked XMRV (mostly) at the CFID’S Association Webinar on Wednesday. DR. RACANIELLO gave us a bird’s eye of retroviruses. Right now there are two models for human infectious retroviruses; HIV, which replicates madly in immune cells and sends millions of virions into the blood to infect more cells and HTLV-1, which
ContinueBorn to Run: NJCFSA Rocks New Jersey
Posted by Cort Johnson Discuss this article on the forums Most states don’t have a statewide CFS organization let alone one that puts on conferences, writes comprehensive CFS manuals, provides high school and college scholarships, advises school on pediatric issues and more. In short, the ME/CFS patients in New Jersey have somehow managed to create a viable, proactive organization that
ContinueThe ‘Optimize Dr. Bateman’s Research’ Fundraiser
Posted by Cort Johnson The first ‘Official’ Phoenix Fundraiser will provide essential information infrastructure elements to Dr. Bateman that will assist her in her studies on XMRV with Dr. Light/Singh, on XMRV with Glaxo-Smith Kline, on muscle and other receptors with Dr. Light, on Ampligen with Hemispherx and other studies. etc. – from CBS, Cort Why Should We Help? Reason
ContinueEvening Up the Odds – the SolveCFS BioBank Begins
Posted by Cort Johnson The odds have always been against the researchers with the guts or commitment to take ME/CFS on. With it’s unfortunate name, vague definition and complicated, multi-systemic nature it’s gotten little respect and even less funding. Everybody knows the statistics – last in the NIH in funding….$20 billion in economic losses and easily, easily the lowest dollar
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