Disability IV: Resources

 The ME/CFS Disability Pages on Phoenix Rising Helpful Hints Getting The Diagnosis Documenting Your Limitations Resources Books and Articles How to Apply for Social Security Disability Benefits If You Have Chronic Fatigue Syndrome (CFS/CFIDS)” – compiled by Kenneth S. Casanova – is available free from the Massachusetts CFIDS Association website. Easily the best single disability resource on ME/CFS. Scott Davis’s Papers

Living With a Disability

This new page on Phoenix Rising highlights resources that assist people living with a disability in their day-to-day lives.   We welcome your comments and suggestions :). Finances Housing and Mortgages – a how-to guide to buying a house for people with disabilities

Disability III: Documenting Your Limitations

 The ME/CFS Disability Pages on Phoenix Rising Helpful Hints Getting The Diagnosis Documenting Your Limitations Resources Most patients are able to verify that they have chronic fatigue syndrome. The really tricky part lies in proving that the limitations that this disease places on you make it impossible for you to work. “Your case is won or lost based on the

Disability II: Getting The Diagnosis

 The ME/CFS Disability Pages on Phoenix Rising Helpful Hints Getting The Diagnosis Documenting Your Limitations Resources Your Physician’s Role Finding a doctor knowledgeable in chronic fatigue syndrome (ME/CFS) and in disability matters is crucial. Your doctor is responsible for documenting that you have chronic fatigue syndrome (ME/CFS) and clearly stating that the nature and severity of your illness keeps you


Studies suggest that employment rates of people with chronic fatigue syndrome (ME/CFS) are low; 15% are believed to work full-time and less than 50% work at least part-time. From one-third to one-half of CFS patients in the U.S. may at some point become unemployed and many of them will depend on the U.S. government’s safety net to help make ends


ME/CFS Buzz: Med Students/Chromosomes/Disability/Growth Hormone/FM Everywhere? (April 17, 2012)

Posted by Cort Johnson RESEARCH A Real Disease or What? Medical Student Survey Suggests Younger Generation Starting to Get It BMC Med Educ. 2012 Apr 3;12(1):19. [Epub ahead of print] Do you think it’s a disease? A survey of medical students. Erueti C, Glasziou P, Del Mar C, Van Driel ML. Almost 200 medical students at Bond University in Australia were polled as to

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Invisible Disabilities Week Is Oct. 13 – 19, 2019

by Jody Smith​ The ME/CFS community is all too familiar with the realities of invisible disabilities. As a matter of fact we are rife with them. For this reason, we’re happy to make some noise for Invisible Disabilities Week. If you have an invisible disability, you’re living with one or more physical, mental or neurological challenges that other people might


Julie Rehmeyer’s ‘Through the Shadowlands’

Writer Never Give Up talks about Julie Rehmeyer’s new book “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand” and shares an interview with Julie …  A riveting new book by science journalist, patient and ME/CFS champion, Julie Rehmeyer, has just hit the stands. “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t


Professor & patients’ paper on the solvable biological challenge of ME/CFS: reader-friendly version

Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS … Recently, Professor Jonathan Edwards, with patients and carers as co-authors (including me), published a peer-reviewed editorial in the medical journal Fatigue: Biomedicine, Health & Behavior. The article became their most-viewed paper within a few days. The editorial highlights

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Dr. Bateman answers IOM questions from the community: Part 2

Clark Ellis brings us Part 2 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community … The Institute of Medicine recently published its report into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). One of the committee members, Dr. Lucinda Bateman, graciously agreed to answer questions submitted by members of the patient community. Questions were submitted

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P2P, or not P2P, that is the question

As the 16 January, 2015 deadline for responding to the controversial P2P draft report draws near, and in the interests of balance and representing the whole community, Phoenix Rising presents two differing views on how to react. Today, Clark Ellis flags up important content to critique and to praise in the report. In her article, Gabby Klein makes the case for protesting


New Exercise Study Brings Both Illumination and Questions

Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer … Given the doubt, scepticism and even denial of benefits that often confronts ME/CFS patients, it’s not surprising that many patients crave clear-cut, objective evidence of physiological problems in the illness. Preferably something that will