Posted by Cort Johnson Discuss this article on the forums Written by sproggle I’d really appreciate it if members of this forum could get behind this campaign, we need as many participants as possible to give us the best chance of receiving a meaningful response and not a useless standard reply! The full details, which I have posted below, can
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CFIDS Association: the last Ten Years – A Timeline (Events and Finances)
Posted by Cort Johnson Discuss this article on the forums 2000 Citing stagnation in the field, CAA stops receiving or funding grants and instead launches a series of scientific symposium designed to open up new avenues of research. They include “Does Dysautonomia Play a Role In the Pathophysiology of This Complex Illness “, “Neuroendocrine Aspects of CFS “, Immunological Aspects
ContinueCFIDS Association Of America Interview with Jennifer Spotila
Posted by Cort Johnson Discuss this article on the forums Jennifer Spotila was Chairman of the Board of the CFIDS Association of America from 2008-2009 and is a Board member today. Companion Articles CFIDS Association: the Last Ten Years – An Overview CFIDS Association: a 2000-2010 Timeline Can you briefly tell us your story with chronic fatigue syndrome (ME/CFS)? Jennie’s
ContinueThe CFIDS Association: the Last Ten Years – An Overview
Posted by Cort Johnson Discuss this article on the forums In 2001 Marc Iverson resigned from the CAA Board citing different priorities and a different vision for the organization. He envisioned an organization that would become a hub for patient activities on the internet and had his view prevailed presumably we would have seen forums, blogs and physician and treatment
ContinueBecoming Visible In Vermont: Invisible – An ME/CFS Movie
Posted by Cort Johnson What is ME/CFS in Vermont like?’ Invisible’ suggests that it’s much like it is in the rest of US. A struggle for health and a struggle to maintain ones sense of mental well-being in the face of a medicals community’s disregard and often disdain. Vermont does have something or rather someone who is different, though, and
ContinueME/CFS Orgs Petition the CDC For Change
Posted by Cort Johnson Discuss this article on the forums (From Muffin) – This petition is quite far-reaching and outlines what patients expect from the new CDC/CFS head, Dr. Unger. The petition authors made sure to include communication to the very senior players so that the petition will have impact. It is a well written document and has ideas that
ContinueOlympic Champion Supports ME/CFS
Posted by Cort Johnson Dan Moricoli is doing some great stuff at the ME/CFS Community Center. (Look at the Scientific Committee members!) Check out this video of an Olympic Champion espousing the need for more support. Olympic Champion Laura Kraut on ME/CFS and the ME/CFS Pocket Money Research Fund. The ME/CFS Champions Campaign seeks to raise public awareness of ME/CFS,
ContinueClinical Study of Simplified Yasko Protocol for CFS and Fibromyalgia
Posted by Cort Johnson Clinical Study of Simplified Yasko Protocol for CFS/fibromyalgia Rich Van Konynenburg, Ph.D. Independent Researcher/Consultant richvank@aol.com Neil Nathan, M.D. Gordon Medical Associates Santa Rosa, CA Yasko Protocol Conference – Boston July 30-August 1, 2010 • Type: Open-label clinical study • Setting: A single private practice in Springfield, Missouri • Informed consent: Patients signed forms after explanation of
ContinueApplication of Yasko Protocol to the Treatment of Chronic Fatigue Syndrome by …
Posted by Cort Johnson Application of the Yasko Protocol to the Treatment of Chronic Fatigue SyndromeRich Van Konynenburg, Ph.D. Independent Researcher/Consultant richvank@aol.comNeil Nathan, M.D. Gordon Medical Associates Santa Rosa, CA info@gordonmedical.com Yasko Protocol Conference – Boston July 30-August 1, 2010 ____________________________________ Disclaimers 1. People undergoing treatment for chronic fatigue syndrome as discussed in this talk must be under the care
ContinueXMRV Buzz Jan 18th and 20th
Posted by Cort Johnson Dr. Mikovits Talks – Part II – we now have two accounts of Dr. Mikovits talk. Lannie has finished up her account and Paula Carnes has provided her overview as well. As often happens both contain bits the other does not. Paula reported Dr. Mikovits said that 30% of adolescents who have tested positive for XMRV will go
ContinueBe-ing and Accepting (Quality of Life Blogs #2)
Posted by Cort Johnson In an exploration of be-ing it pretty quickly becomes clear that we are never alone in this world…we are always, always ‘in it’ with something. Whether it’s how our body feels or our thoughts about the person at the grocery store or the dishes in the sink or our general situation we’re always in the world
ContinueHealKick! Forum for Young Adults with ME/CFS Begins
Posted by Cort Johnson Discuss this article on the forums PR member mojoey has created Healkick, a group that aims to provide a medical, social, and professional network for 40-and-under young adult patients with neuro immune disease (ME/CFS, fibromyalgia, chronic lyme, atypical MS, MCS, and mold illness.) In order to join, please go to groups.google.com/group/healkick (you’ll need to sign up
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