Posted by Cort Johnson Dr. McClure has been publicly pretty clear that she believes XMRV is not present in ME/CFS. Last week she hinted about an article soon to come out that will explain just how contamination caused XMRV to pop up in ME/CFS patients. Now to her credit she and her Imperial College retrovirologists have put their pen where
ContinueAuthor: Phoenix Rising Team
Interview with Dr. Lapp – Hopeful About Ampligen’s Approval
Discuss this article on the forums Written by Kelvin Lord To give you an idea how long Chuck Lapp has been serving the CFS/ME community, think about this – Before Steve Jobs invented the Macintosh Computer, Dr. Charles Lapp was contacting the CDC about a mysterious new illness. Dr. Lapp has been treating and specializing in CFS patients for over
ContinueFinally Getting ‘IN’
Posted by Cort Johnson XMRV has turned the ME/CFS world upside down and in a very good way. In the past year a‘cast-out’ disorder has shown signs it may be getting ‘in’; getting into major research facilities, getting into the discussion of major officials, getting into the groove that most diseases participate in…. in short its shown some signs of
ContinueA Conversation for Possibility
Posted by Cort Johnson What is really possible in ME/CFS? We are so embedded in what hasn’t happened, in our dark history – in what hasn’t happened or what did happen that shouldn’t have happened – that we hardly take time to think about the other side of the coin – what’s possible? If we were put aside our history
ContinueReport From the OFFER Conference
Posted by Cort Johnson Dr. Singh An Old Murine Leukemia Virus (MLV) Hand Dr. Singh knows these viruses well and she’s not surprised at the difficulty researchers are having pining them down. She has been studying XMRV for four years and a close relative of it (Moloney Murine Leukemia Virus) for 12 years. ](How lucky we were that a major
ContinueLost in the World? the Romberg Test and ME/CFS
Posted by Cort Johnson Standing is just not a pleasant experience for many people with CFS. The autonomic nervous systems of a chunk of people with ME/CFS dysfunction when they stand up – sending their heart rates soaring, their blood vessels opening instead of closing and , their brains into confusion due to lack of oxygen. But even if they
ContinueChronic Fatigue Sydrome: 10 Things People Misunderstand About This “Fatigue”
Discuss this article on the forums Written by Jody (written for EmpowHER.com https://www.empowher.com/chronic-fatigue-syndrome/content/chronic-fatigue-syndrome-10-things-people-misunderstand-about-fatig) I think we can all agree that Chronic Fatigue Syndrome is a stupid name for an incapacitating illness. I think we can also agree that it is exceedingly misleading to the casual observer. Here are ten things that are often misunderstood about the “fatigue” of Chronic Fatigue
ContinueTai Chi: Meditation in Motion by Jody Smith
Discuss this article on the forums (A recent Fibromyalgia Tai Chi study published in the New England Journal of Medicine found substantial improvements after a 12 week, twice a week trial of Tai Chi. SF 36 scores were moderately increased while Fibromyalgia Impact Test scores (FIQ) dramatically improved indicating increased activity levels. https://pubmed.ncbi.nlm.nih.gov/20818876 They still had fibromyalgia but they felt
ContinueThe Times They Are a Changing – CAA Nominates Distinguished Researchers To CFSAC…
Posted by Cort Johnson Discuss this article on the forums ‘Names’ Step Out – A key, key need for 25 years has been to get distinguished researchers, ‘names’, interested in ME/CFS. We’ve always had good, committed researchers but rarely have we had people who could be counted as ‘opinion-makers’ or leaders. That is changing – quickly. The WPI’s XMRV finding
ContinueLot’s of Questions at Int. XMRV Work Shop Q&A…and one BIG Answer?
Posted by Cort Johnson No ‘Flip’ Yet: The Workshop did not, as we hoped, turn out to be the place where the research world flipped from worrying about how to find the virus to figuring out what it does and how it does it. According to one report Dr. Ruscetti said he, at least, was turning his attention from diagnosis
ContinueA Time to Act!
Posted by Cort Johnson “A Time to Every Purpose Under the Heaven” Ecclesiates says there is a “A time to every purpose under the heaven”. I suggest that our time is now. ME/CFS has been ignored and kicked to the side of the road for decades. Twenty-five years later – long after it has been shown to afflict at least
ContinueDr. Cheney on the XMRV International Workshop
Posted by Cort Johnson Discuss this article on the forums Dr. Cheney gave permission to have his comments on the Workshop posted here. Thanks to Rich for contributing it. Quote: “I attended and was a poster presenter at the recently completed XMRV conference at the NIH. It was fascinating and I took perhaps 30 pages of notes. The bio-political undertones
Continue