Posted by Cort Johnson Discuss this article on the forums Major Study – The NIH tagged Anthony Fauci to oversee a major study on XMRV and CFS. The HEAD of the NIAID (National Institute of Allergy and Infectious Diseases), an Institute with a multi-billion dollar budget, and a major figure in immunology with over 800 citations, Fauci is the biggest
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Dr. Peterson and ME/CFS Patients Meet with NIH Officials Prior to XMRV Workshop
Posted by Cort Johnson Discuss this article on the forums (Bob Miller is a long time person with severe ME/CFS who has frequently testified at CFSAC Meetings. Congratulations to Bob for engineering such a startling meeting. ) By Rivka Solomon, with help from Robert Miller Contact: Robert Miller < bobmiller42@msn.com> See Rivka’s Video for Action here On September 7, 2010,
Continue“Dear Sec. Sebelius, Dear Director Collins” Video Campaign
In celebration of the 1st International XMRV Conference, here is the link to my “Dear Secretary Sebelius, Dear Director Collins” bedroom video. https://www.youtube.com/watch?v=8t1Xqp1LDxM I hope this starts a video campaign where people with ME/CFS make their own videos from their own beds, post them on youtube and email them to HHS Secretary Sebelius and NIH Director Collins. With hope for
ContinueFour Viruses! Alter Paper Confirms Retroviral Activity in CFS
Posted by Cort Johnson Kim McCleary stated that the Alter paper was the most anticipated research paper on ME/CFS ever and she was surely right. Demonstrating a remarkable online viral spread of its own Kim reported over 150 media outlets quickly jumped on the XMRV story. The story sent attendance at the Phoenix Rising Forums zooming, quickly breaking the record
ContinueCAA Talks with the Experts on XMRV
Posted by Cort Johnson The CFIDS Association started off what’s going to be an exciting week for XMRV with a CFIDLINKs devoted to asking the experts about XMRV. Fittingly enough Dr. Lo and Alter were first. After noting that both groups, the Alter/Lo and WPI/NCI/Cleveland Clinic groups had found a similar ‘strong association’ between murine Leukemia retroviruses (in one case
ContinueMLV Related Viruses – A Simpler Explanation
Posted by Cort Johnson Written by Bob MLV related viruses – a simpler explanation I’ve already posted a blog about MLV-related viruses but I thought it might be quite difficult to follow for some people who can’t follow the science easily… So I’ve now written this shortened, simpler, version, which hopefully might be easier to grasp. (feedback welcome.) MLV =
ContinuePost Exertional Malaise IV: Power to the People by Jennifer Spotila, J.D.
Discuss this article on the forums (Jennifer Spotila concludes her 4-part series on the hallmark symptom of ME/CFS – Post-exertional malaise. Thanks to Jenny and the CFIDS Association for their permission to post it. You can check out the original article here. ) “It is not necessary to understand [PEM] before we respect it.”1 This four-part series of articles about
ContinueCorinne’s FOLLOW-UP APPOINTMENT WITH DR. PETERSON
Discuss this article on the forums (Last year Corinne provided a five part series of her experience as a first time patient with Dr. Peterson. Now she’s back 8 months later to report on how everything has gone and how her second visit with Dr. Peterson went. Check out her first report here) As promised, I would like to share
ContinueExercising Discipline (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I absolutely hated gym class in Junior High. I was a skinny kid growing faster than my Mom could sew, and I had no arm muscles whatsoever. So when the dreaded “physical exam” days came around, I usually got physically sick. Trust me, vomiting cereal before you have to do
ContinueDr. Peterson’s Update (on XMRV, Ampligen, Anti-retrovirals, Stem Cells and more.)
Written by m0joey (Joey posts a scintillating review of his meeting with Dr. Peterson at a particularly opportune time. He gets in depth with Dr. Peterson on XMRV, ampligen and treatment) Just to backtrack a bit, I first saw Peterson in September of 2009. It was the same old story: what can I do to get these gutless NK cells
ContinueOpening the Door to a New Era: the WPI Arrives
Posted by Cort Johnson As the Whittemore-Peterson-Institute opens its door on what may be a new era of understanding and treating ME/CFS, it’s good to look at the circumstances that spawned the Institute. It was borne out of hope and possibility, for sure, both of which it has vastly exceeded but it was also borne out of trial. The new
ContinueStanding Up For ME/CFS: Rivka in Washington DC
Posted by Cort Johnson (With so much happening and so much at stake, Rivka reminds us that now is the time to act) Dear Everyone Who Cares About People With ME/CFS, I just held my one-woman demonstration at the Red Cross national headquarters in Washington DC (Red Cross collects 45% of all blood donations in this country) and at the
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