Posted by Cort Johnson Discuss this article on the forums Many researchers think the problems in the brain or central nervous system probably play a key role in ME/CFS. Some of the most interesting research in the past couple of years has focused on the brain and the Ottawa conference was no exception. At the conference we saw research findings
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Ampligen Study Take II: A Correction
Posted by Cort Johnson The recent blog on Hemispherx’s Ampligen study has been amended to take account of the fact that the study involved an analysis of data from a 1998-2004 study. The blog in its original state suggested that this was a new study done in response to the FDA’s 2009 concerns. That was not true. Hemispherx may have
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Ampligen Study Sparks Hopes for FDA Approval of First Drug for CFS
Posted by Cort Johnson Short-take: Hemispherx provides added proof of Ampligens efficacy in ME/CFS and allays safety fears but is it enough? Hemispherx has published a major study on the effects of Ampligen (Rintatolimod) on CFS. Ampligen has been under the gun since the FDA’s refusal to approve the drug in 2009, pending more study. A Big Blow – In
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Ottawa 2011 Conference Reports Pt V: the Brain Studies
Posted by Cort Johnson Many researchers think the problems in the brain or central nervous system probably play a key role in ME/CFS. Some of the most interesting research in the past couple of years has focused on the brain and the Ottawa conference was no exception. At the conference we saw research findings begin to focus on specific areas
ContinuePhoenix Rising Moving!….to New Forum Package- Evaluators Requested..
Posted by Cort Johnson Discuss this article on the forums Written by Cort The Phoenix Rising Forums are moving :Retro eek:….to a new Forum package called Xenforo. The move did not come easy (particularly for me); VBulletin has been good to us but after taking a close look at both packages it became clear which way we should go…Xenforo is
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ME/CFS Buzz (March 12th 2012)
Posted by Cort Johnson RESEARCH GROUPS ON THE MARCH….. CAA Spells Out Approach in Research Ist Webinar I believe we are at the cusp of a revolution in how CFS is viewed, researched and treated. I don’t know it’s a year or 5 years but the future has never been brighter. Kim McCleary With 471 people enrolled, participation in a
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Posted by Cort Johnson After looking at private/non-profit research efforts in 2012 we turn to what the Feds (CDC, NIH, DOD) will be doing…. Centers for Disease Control The CDC approach to ME/CFS under Dr. Unger is changing and for the better. Increased outreach and collaboration have become hallmarks of Dr. Unger’s CFS CDC program. Physician Education Three Continuing Medical
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ME/CFS Recovery/Recovering Stories Requested
Posted by Cort Johnson As part of a treatment overview Phoenix Rising is documenting what has worked for individuals who have gotten well or nearly well. While recovery is not common it does happen and we want to find out how. If you’ve recovered or have mostly recovered please give us your stories. If you know someone who’s recovered please
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CAA Studies Target New Areas In ME/CFS
Posted by Cort Johnson The CFIDS Association of America (CAA) released a list $2 million dollars worth of new CAA funded studies last week. There’s something of a ‘gestalt’ to a CAA study; the CAA likes to fund studies that gather enormous amounts of information and then use data mining techniques to ferret out new patterns, they like to ‘smush’ researchers
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ME/CFS Buzz: News of the Week From Phoenix Rising (Feb 29th, 2012)
Posted by Cort Johnson ME/CFS Buzz: News of the Week – a New Feature From Phoenix Rising (weekly short takes on ME/CFS research, treatment and news) RESEARCH Fear and Loathing….An Exercise Study Kinesiophobia, catastrophizing and anticipated symptoms before stair climbing in chronic fatigue syndrome: an experimental study.Nijs J, Meeus M, Heins M, Knoop H, Moorkens G, Bleijenberg G. Nijs
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CFIDS Association Commits to ‘Open Science’ Movement, Seeks to Bolster CFS Research Field
Posted by Cort Johnson Virtually every ME/CFS research and non-profit is in the same fix – they’re big on ideas and short on money. The CAA, of course, has the same problem… even though, arguably, the needs in ME/CFS are larger than almost any other disorder, next to the big medical non-profits like the Susan G. Komen Foundation for breast cancer,
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Living in the Shadow of Pain: Jennie Spotila’s Senate Testimony
Posted by Cort Johnson U.S. Senate Committee on Health, Education, Labor & Pensions Full Committee Hearing on Pain in America: Exploring Challenges to Relief February 14, 2012 TESTIMONY OF JENNIFER SPOTILA This testimony is submitted on behalf of the CFIDS Association of America, in loving memory of Christy Gaffey of Williamsburg, Iowa. Christy lost her battle with chronic fatigue syndrome
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