Posted by Cort Johnson Taking a Big Hit- The CDC found that the average family containing someone with chronic fatigue syndrome took about a $15,000 hit yearly in medical costs, lost wages etc…and that about 1/4 of medical costs were paid directly out of pocket. .. It’s clear that many families are hit hard financially by ME/CFS and anything they
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Posted by Cort Johnson The recent blog on Hemispherx’s Ampligen study has been amended to take account of the fact that the study involved an analysis of data from a 1998-2004 study. The blog in its original state suggested that this was a new study done in response to the FDA’s 2009 concerns. That was not true. Hemispherx may have
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Posted by Cort Johnson Short-take: Hemispherx provides added proof of Ampligens efficacy in ME/CFS and allays safety fears but is it enough? Hemispherx has published a major study on the effects of Ampligen (Rintatolimod) on CFS. Ampligen has been under the gun since the FDA’s refusal to approve the drug in 2009, pending more study. A Big Blow – In
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Posted by Cort Johnson As part of a treatment overview Phoenix Rising is documenting what has worked for individuals who have gotten well or nearly well. While recovery is not common it does happen and we want to find out how. If you’ve recovered or have mostly recovered please give us your stories. If you know someone who’s recovered please
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Posted by Cort Johnson Chapter 4 of How to Be Sick – The Universal Law of Impermanence There’s just no getting around universal laws. They’re like gravity – you cannot like gravity, you can protest against gravity, you can pretend gravity doesn’t exist but as soon as you roll out of bed there it is – gravity. The Buddhist law
ContinueCorinne’s fifth blog of her visits to Dr. Peterson is her most comprehensive yet. First, an improving Corinne gives a summary of her work to date with Dr. P, then we get a blow by blow of her visit, and lastly the ‘Queen of Questions’ hits up Dr. Peterson with her long list of questions, and as always, he responds.
ContinuePosted by Cort Johnson It doesn’t always take a village; sometimes it just takes a committed few to possibly change the future of a disorder; in this case, it may come down to just thirty patients and two researchers in Norway. The news that 2/3rds of CFS patients taking a chemotherapy drug called Rituximab significantly improved in a rigorous, double-blinded
ContinuePosted by Cort Johnson This was taken from the Treatment section of “Looking Forward: Dr. Peterson on ME/CFS Research, Treatment and Hope for the Future”. This article was derived from notes I took after a talk with Dr. Peterson; the views enclosed hopefully reflect the essence of the talk but any mistakes, of course, are mine. Thanks to Corinne for
ContinuePosted by Cort Johnson (Looking Forward: Dr. Peterson on ME/CFS was derived from notes I took after a talk with Dr. Peterson; the views enclosed hopefully reflect the essence of the talk but any mistakes, of course, are mine. Materials were added from the IACFS/ME Ottawa conference to supplement the article). Thanks to Corinne for arranging a meeting with Dr. Peterson. Dr.
ContinuePosted by Cort Johnson ‘The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We will examine ME’s role in this disorder throughout the month. All articles, blogs
ContinuePosted by Cort Johnson “The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the‘Month of ME’ on Phoenix Rising. We will examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced
ContinuePosted by Cort Johnson The Consult In Part I of the Dan Moricoli’s three part series on Dr. Klimas’s Heart Rate Based Activity Management Program on ME-CFSCommunity Center.com, we followed Brenda as she did a VO2 max exercise test on a bicycle at Dr. Klimas’s CFS Clinic. In the second video Dan video’s Brenda as she consults with Connie Sol,
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