Board of Directors
Karen Luoto (Board Member) – Karen was a business owner and Project manager with over 18 years of experience in the Information Technology field, for various business industries across multiple platforms in both mainframe and client server architectures. “Project Manager Professional”, PMP certified for 9 years. She has managed national projects, using international resources, some with over $50M budgets and multi-year timeframes, to meet requirements for business critical functionality while increasing productivity. She was voted into the Who’s Who in Women Entrepeneurs when she came down with ME/CFS in 2007 and had to quit working in 2008. She was semi-bedbound for 2 years and knows intimately what it requires just to stay alive. She became a member of Phoenix Rising in 2010 and volunteered for helping with the administrative tasks necessary to run a non-profit. She was requested to help run the non-profit by Cort Johnson and the other board members. When asked to be president and be on the board by Cort and the other members of the board, she accepted under the guidelines that the non-profit would continue to stay true to the mission of a non-profit using the public donations to maintain that mission.
Mark Berry (Board Member) – BSc Mathematics (University of Manchester), MSc Computer Science (University of Birmingham). Mark has had ME/CFS – diagnosed as “Multiple Chemical Sensitivity” and an “Idiopathic Immune Disorder” – for 15 years. He has managed to work part-time from home as a software engineer for most of that time, and now works as a Portal/Web Developer at the University of Nottingham. Mark is a moderator on the Phoenix Rising forums, and is excited about the potential of the software projects Phoenix Rising is developing to enable ME/CFS patients – as well as their organisations, charities, advocates, supporters, physicians and researchers – to meet, share, collaborate, communicate, document their illness and experience, and to campaign and work together for a better understanding of ME/CFS, fair treatment by medical and statutory authorities, and a huge increase in biomedical research funding for ME/CFS and other severe and idiopathic neuroimmune diseases.
Adin Burroughs (Board Member) — Adin came down with ME/CFS (PostViral Encephalitis with autonomic neuropathies) and Fibromyalgia in 2003 while on active duty with the USAF as a reservist (individual mobilization augmentee/IMA). Adin began volunteering with Phoenix Rising in 2009 in a technical role and has helped Phoenix Rising through multiple hardware and software platform changes through the ensuing years. Adin has a BSc in Computer Science (University of Central Florida) with professional experience in systems engineering, software and hardware development, and distributed realtime simulations.5 comments