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Written by thefreeprisoner
Transcription by Kim
Judy Mikovits
Section 2 (Video #1: 27+ mins to 40:08)
On some of these patients we looked three and four times for the DNA in the unstimulated cells. So this is just that pellet that I made when I sorted all the various samples. I just held one as white cells so that I could make DNA later or RNA later, depending on the technique I wanted to use downstream. So, it’s important that this was in 68 out of 101 samples. It was 68 out of 101 patients and it clearly says that in the paper.
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Written by thefreeprisoner
Transcriptions by Advocate, JAS, Lily, thefreeprisoner, Kim & garcia of the Phoenix Rising Forums
Question: Before any of the questions I just wanted to say thank you because through your work and your collaboration, you’ve bought more excitement to the CFS community and your collaborators have than in 2 decades. And you’ve also brought more interest in the illness than we’ve probably seen ever, so I thank you.
Judy Mikovits: You’re welcome. [Applause]. That’s interesting, because the reviewers of the paper didn’t really know what CFS was. They said: “oh that’s a poorly understood and complex disease” and they went on to the virology.… Read More
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Written by thefreeprisoner
Transcribed by Sproogle
…the response elements that might give us a clue as to the pathogenesis and then Bob Silvermans lab showed the same thing. He showed that androgens stimulate transcription (the replication and division of the virus). So here’s a clue to the disease because we know the only two diseases so far that are associated with this retrovirus are prostate cancer (a hormone responsive disease) and CFS (one that’s thought to occur primarily in women).
Interestingly that I didn’t say that I knew is LNCaP is androgen responsive. So you can make it do a lot of good things and that’s why we use it in drug development for prostate cancer.… Read More
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Written by thefreeprisoner
[If you missed it, part 1 of this transcription is here]
When you look at XMRV at this point, it seems to me that this is a very good theorietical cause for the illness but that’s gonna take some time before that’s proven. And I’m happy to say that if it’s proven to be the cause then we’ll go from there. If it’s disproved, then I’ll say OK, but I want it to be disproven by science not politics. If it’s put aside because of political inconveniences then I’m not going to be able to accept that.… Read More
A look back at the Pro’s and Con’s of Dr. Reeves Tenure at the CDC
THE PRO’s - despite the antagonism towards Dr. Reeves there were some pro’s to his program
A commitment to research – whatever you want to say about Dr. Reeves he was a vigorous ME/CFS researcher. We can’t know what the internal milieu at the CDC was like but at least in public he presented the disease as a serious disorder that was worthy of research.
Documenting economic losses and prevalence – CDC studies establishing high prevalence rates (Wichita study) and economic losses (approx. $10 billion/year) provided much needed documentation of this disease’s impact.… Read More
In a startling announcement on 3pm on Friday the CFIDS Association of America reported that the man who’d vowed to outlast everyone, Dr. Willam Reeves of the CDC, was out and that Dr. Elizabeth Unger was temporarily taking over controls of the CDC’s CFS Research program.
Certainly, no one expected this. At the end of the recent ten year evaluation period the CDC had appeared to turn blind eye to all the complaints; neither the CFIDS Association documentation of a huge amount of waste in the program, or later the IACFS/ME’s or the CFSAC’s calls for fundamental change or the scathing public review session seemed to make any difference at all. … Read More
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Written by Kelvin Lord
Treatment #1
The adventure begins.
I arrived at the Doctor’s office a few minutes late because of bad planning on my part, so I was a little stressed to begin with. It took them about a minute to get me set up in a nice reclining chair in the “infusion room” and when Gwen took my routine vital signs (blood pressure, and pulse) she commented: “So, you’re a little excited today, eh?” and smiled. Apparently my BP was a little high, but her attitude mitigated my need to ask further questions, or do my usual “journalistic interrogation.”
Gwen, the nurse practitioner who actually does the infusions, calmly went over the procedure, explaining how the first couple times they were going to give me less than the full 400ml of the “drug”, and work up slowly.… Read More
The Recovery/Recovering Stories #4
Janet’s Story
What really attracted me to Janet’s story was how multi-dimensional it was. She’s had both severe endocrine dysfunction and severe pathogen problems. Both high doses of antivirals and alternative ‘behavioral-like’ therapies like meditation and her own quest for (spiritual) wholeness have been important for her. She’s still quite ill but she’s much better than she was. The kind of multidimensional treatment approach she’s used will probably be helpful for many.
Mine is a long and complex history, but which of ours isn’t. In 1990 I was diagnosed with Hashimito’s and shortly after Fibromyalgia. I was in profound pain for 4 years with my thyroid levels going up and down, no one could regulate them.… Read More
Written by thefreeprisoner
Thanks to ‘thefreeprisoner‘ from the Phoenix Rising Forums for transcribing the first part of Dr. Mikovits talk on Prohealth on Jan 22nd.
Annette Whittemore:
Dr. Mikovits Prohealth/HHV-6 Fdtn XMRV Lecture
…happy to see that the ProHealth organisation was able to get this online so a lot of patients who are too ill to make it are able to follow this online.
First of all I’d like to that Rich Carson, I’d like to think ProHealth for putting this together and the HHV-6 foundation and Kristin Loomis.
It’s a pleasure to be here and to have an opportunity speak to you about the recent discovery of XMRV in Chronic Fatigue Syndrome patients.… Read More
