Posted by Cort Johnson For the last article in the “20 Years Ago Today” Series celebrating the 20th anniversary of International Awareness Day, we asked ME/CFS researchers and professionals to have some fun and take a look in their crystal ball and hazard a guess as to where CFS will be on a variety of topics in five years. We
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Posted by Cort Johnson (This was never going to be easy….ME/CFS has been ignored by every federal agency for over 2 decades and its going to take time and work to break down those walls. Let’s send a message that we are no longer willing stand for being ignored…Thanks to Mary Dimmock, Bob Miller and others for standing up for
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Posted by Cort Johnson An Institute for all Americans…. Or Just Some? The Department of Health and Human Services 2013 Budget proposal doesn’t mince words about whose health the Department, which oversees the NIH and CDC, is charged with protecting…. This Budget request represents the Administration’s priorities for guiding the Department of Health and Human Services (HHS) to enhance the
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Posted by Cort Johnson In the World – President George Bush made news by suddenly falling violently ill and doing a face-plant into the lap of the Japanese prime minister. The European Union is formed (perhaps to break up 20 years later?) and a 12-year civil war ends in El Salvador. Yugoslavia breaks up and the Bosnian war begins… Pope
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Posted by Cort Johnson Who’s made the most difference in the chronic fatigue syndrome research field? A measure called the ‘H-index’ attempts to determine the impact a researcher has had on a field based on how often his/her work is cited by others. Researchers publishing ‘seminal’ papers in highly read journals will do the best. The index does not measure
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Posted by Cort Johnson There’s nothing like a video to arouse passion. ME/CFS videos really came of age five years ago with the publication of Sleepydust’s ME/Chronic Fatigue video. That video, still her only one, has garnered over 130,000 views – far outpacing any others. To celebrate 20 years since CFS International Awareness Day was created, here are the top 15
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Posted by Cort Johnson “It was twenty years ago today…” Check out our “20 Years Ago Today” survey celebrating the 20th Anniversary of International Awareness day. A wide-ranging (would you take Rituximab if you could get it for free?), sometimes quirky, (what was the most you ever spent on ME/CFS?), sometimes wishful (if you had $100 million dollars to spend
ContinuePosted by Cort Johnson Discuss this article on the forums Written by Cort We’re moving tomorrow! After much testing and evaluating we hope the transition will be as seamless as possible but in a move like this some glitches are probably inevitable. All you will need to do is login again (and click the stay logged in button, if you
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Posted by Cort Johnson Taking a Big Hit- The CDC found that the average family containing someone with chronic fatigue syndrome took about a $15,000 hit yearly in medical costs, lost wages etc…and that about 1/4 of medical costs were paid directly out of pocket. .. It’s clear that many families are hit hard financially by ME/CFS and anything they
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Posted by Cort Johnson RESEARCH NEWS A Very Unrewarding Ilness: CDC Study Suggests Reward Center of the Brain is Rather Quiet in CFS Chronic fatigue syndrome does appear to still be something of a hot media item…The latest CDC study made the news before it was published or even presented at a big conference. (This study was actually presented at
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Posted by Cort Johnson Funny, charismatic and often an inspiration to others, for almost two decades Patrick battled an illness his doctors couldn’t fix and his country has essentially ignored. Patrick was, by all accounts, what doctors might call a ‘good’ ME/CFS patient; he worked hard on the physical side, trying the different protocols available, and on the mental side-
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