Jody Smith reflects on the growth of the Phoenix Rising forums, from a handful of members in 2009 to several thousand today…
There may have been other forums for people with ME/CFS back in 2009, but if there were, I didn’t know about them. Phoenix Rising’s forums, as far as I knew at that time, were unique. So when I stumbled upon this place I began to seriously hang around.
Forum posts from all sources were infrequent back then, maybe half a dozen in a day. As more members began to slowly find their way in, there were the occasional riotous days of (I’d estimate) perhaps two dozen posts by half a dozen people.… Read More
We started out with seven CFS non-profits in the running for $175,000 in the Chase Community Giving Contest. We knew the contest was going to get really volatile in the last couple of days and it has with four organizations dropping like rocks.
With only 22 hours left in the contest only three organizations appear assured of taking home any money; the IACFS (AACFS), the CFSKnowledge Center and Mass CFIDS.
Rocky Mountain and Wisconsin have dropped precipitously and are in the last few hours have dropped out of the top 100 (and the $25,000 prize). The fine New Jersey CFS Association which has done so much over the years is now off the leaderboard as is the exciting Enterovirus Foundation devoted to studying what may be a key culprit in CFS.… Read More
Chase Community Giving is at it again. This time they have expanded their month long Facebook contest to include a round of larger non-profits with have annual operating expenses from 1-5 million dollars. That would includes two ME/CFS organizations in the US; the Whittemore Peterson Institute and the CFIDS Association of America.
The WPI, of course, uncovered XMRV, which has brought much needed exposures to ME/CFS and could be the breakthrough we’ve a;; be waiting for plus they have a dynamic clinic opening up shortly. The CAA demonstrated their effectiveness in supporting high quality research when many of the presenters at the State of the Knowledge conference thanked them for their support.… Read More