Preparing for Surgery – Anesthesia Warning

General anesthesia can have debilitating effects on some people with chronic fatigue syndrome. In general patients are recommended to avoid general anesthesia when possible.  Several doctors have produced documents outlining their recommendations for anesthesia and the New Jersey CFS Association has produced a card you can download and print out. (Laminating the card appears to give the recommendations more heft with hospital personnel.)

Fred1234567 July 26, 2012 at 9:41 pm

I’m one of the people made worse by a minor operation- going from mild/moderate to severe and bedridden ME after the operation for a deviated septum (in theory to help with the ME by increasing oxygen) . 18 months later I have not recovered.

Wendi October 26, 2013 at 10:56 pm

Fred – I’m sorry to hear this happened to you. I am debating, too, after 15 + years of suffering to have deviated septum surgery but am looking at doing the twilight sedation instead. Frankly, I’m scared to death now. I hope you have recovered some.

I so desperately pray to find a non-surgical fix, but I can’t! I’m so sad.

Aidan Walsh June 21, 2014 at 5:05 am

This sounds like the result of systemic mastocytosis this is one of the things to be watched same as dyes and MRI contrasts…’histamines’

Cort July 27, 2012 at 4:03 am

My goodness, Fred. That’s really something. Have you tried saline solution? We’re going to have a story coming up of a woman who also had mild/moderate CFS who was made much, much worse by the anesthesia. It put her flat on her back for several months. What got her out of it was IV drips of saline solution….

SanDiego#1 July 31, 2012 at 9:07 am

Did any one ever think it may have been the Oxygen and not the anesthesia.? I just found out I am highly toxic to Oxygen. I need biopsy done and am told to wait because of this and Diastolic Dysfunction.

Paul July 17, 2013 at 6:31 am

Hello. I developped CFS and fibro with the anesthesia. My doctor confirmed it.

It was a simple operation, but in the operation I felt much pain when the anesthesia was injected and the same day I had blurry vision, palpitations, numbness. Then I started with pain in all my body, with exhaustion and fatigue not being able to get up from bed.

I know also about another person who had the same problema with anesthesia when she went to the dentist because of malpractise.

I have read online about many people developing CFS and fibro after taking medicines and after anesthesia. I wish I had known the risk before having surgery.

Jean April 22, 2014 at 10:11 am

Since having my gall bladder out ten weeks ago, I have had a racing pulse, that has now calmed dow, my heart racing, this also has calmed down to a certain extent, but can not do much without it starting up again. Also my M.E. seems to be lasting much longer than it normally does, feel tired all the time.
Has anyone else with M.E. experienced heart palpitations after surgery? and how long did it last?

Adrienne January 11, 2015 at 7:42 pm

Surgery did not cause it for me, but that is a serious condition and should be diagnosed and treated. It involves your heart. Like mine!

Amy June 3, 2014 at 11:21 pm

I had cataract/lens replacement surgery in December 2013. Three days after the surgery I started a 103 temp that ran for three days and went away. In January I had my other eye done.
When I returned to work I realized I had no energy and by the end of each shift I felt like the walking dead. My brain and body hit a brick wall. After taking more days off hoping to finish “recovering from surgery” I felt no better.
My doc ran blood tests and ruled out all the usual problems that might cause this exhaustion. She said my EBV test was “off the charts” and diagnosed CFS.
So… Was it the surgery… Or was it the virus after the surgery… Or is it re activation of EBV… ?
I’m usually good at researching things but CFS has my brain so twisted up that I forget what information I’m trying to gather and connect. It’s like sudden adult onset ADD with exhaustion.
So confused.

Mary Pasloske June 12, 2014 at 11:08 pm

I had an operation for bleeding ulcer 3 years ago. Then I had Takotsubo cardiomyopathy and an angiogram was performed. During that time shots in my shoulder, neck and knees for pain. The last operation bove was Aug. 21,02. Then I terrible flu for 3 mos. starting in November. On Oct. 10th. 2013 I had a knee replaced.

After the first operation I became so exhausted I could barely look after my husband and I. There were many visits to several doctors with many tests to no avail. I do not know why to this day .

For some reason after my knee operation I became bedridden most of the time and when I forced myself to make meals or even talk to our children and grand children on the phone it was agony.

I am 74 and have been an extremely active person before FM got me down but after the above first operation I got worse and after my knee replacement I wondered why be here anymore. I had on energy to have a life plus my husband is 84 and also has many health issues also.

We are moving to a seniors complex and the thought of moving prettified me.

Well 2 weeks ago some of my energy came back. I was soo grateful. But my fibromyalgia is so bad, the pain has all come back after feeling my right side had cleared with the help of Dr. St Amand, his book and on line group. It is beyond acceptance after all my hard work trying to be better. The doctors have no answers or at least those I’ve seen.

There is pain in both the left and right side of my head. Migraines increased up to 6 a day after knee operation, the feeling of things like snakes going around in the top of my head, pain in both knees, back, feet, neck, shoulders,hips, and jaws. Allergy is so bad I cannot read at times,extreme congestion and choking on even water or nothing to the point I am afraid of choking to death. My head is so itchy I can hardly keep from scratching all the time. Hair is thinning to nothing. Dry mouth for no reason, dry ears also.

My mind is getting worse and worse as far as memory goes. Very scary.

Enough for now. I feel the surgery set me back to this level along with the flu.

Alll that I can say is it is scary.

All the best to others in this. situation. My prayers are with you. Mary

Pat Johnson June 30, 2014 at 5:05 pm

Another angle to consider:
“Patients with vitamin B12 deficiency are exceedingly sensitive to neurologic deterioration following nitrous oxide anesthesia. If unrecognized, the neurologic deterioration becomes irreversible and may result in death.”

Valerie October 20, 2014 at 1:20 pm

Great post! There are risks involved with anesthesia, and it’s crucial to consult with your doctors and anesthetist before the surgery about any medical conditions that could affect the anesthesia. Thanks so much for sharing!

Adrienne January 11, 2015 at 7:38 pm

I am deteriorating due to atrial-fibrillation and am facing implantation of a pacemaker plus ablation of the av node.
I am very scared due to the anesthesia. Specifically, does anyone have ANY knowledge or experience of that stuff called twilight anesthesia? I don’t know where else to look.

Kim May 25, 2015 at 6:23 pm

I donated my kidney to my cousin 3 years ago. I have had M.E. And fm for nearly 10 years. I was delighted to learn that it did not rule me out from donating. However after I got out of theatre I was tachycardic for 5 hours. My cfs did not get worse afterwards nor my fm.

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