Support Groups

United States 

Phoenix Rising Forums - this large Forum program has become the place to go to discuss treatments, research, news and events

ME-CFS Community Center - created by Dan Moricoli, the ME-CFS Community Center boasts a mix of blogs, message boards, videos, etc. that is unmatched in the CFS community. Besides producing his own video’s, Dan has easily the biggest collection of ME/CFS video’s on the net.

CFIDS Association of America (CAA) -  The CAA funds research, produces Webinars with CFS researchers and physicians, a Research1st blog, a patient Biobank/registry, Facebook site, etc. easily the most active CFS organization in the world; join them, donate to them and use their website.

Prohealth is one of the busiest chronic fatigue syndrome (ME/CFS) site on the web. Prohealth, a nutritional supplement company founded by ME/CFS sufferer  and philanthropist Rich Carson, provides message boards, chat rooms, frequent talks by doctors, a newsletter and much more on ME/CFS. Don’t miss it.

Co-Cure the major hub for chronic fatigue syndrome (ME/CFS) information.  There’s always something new on Co-cure (Cooperate and Communicate for a Cure).

The DFW CFS/ME and Fibromyalgia Information Distribution Services -Lori Fidler has quickly built up the DFW CFS/ME and FM IDS into a fantastic resource hub for ME/CFS and FM patients. Contains forums as well.  One of my personal favorites.

Fighting Fatigue is an active, beautifully put together website with easy to understand articles and lots of resources and links.

FM/CFS/ME Resources - Clear, concise, attractive, informative website with an excellent newsletter, a treatment section, disability information on 8 different countries (!) and a world-wide ME/CFS doctors database (!).

Whittemore-Peterson Neuro-Immune Institute - The first state CFS Research Institute ever – built in Nevada with the assistance of the Whittemores and the notable Dr. Peterson.

IACFS/ME  - this website from professional society of CFS Researchers contains information on CFS management, drugs, the definition issues and more. The IACFS/ME puts on the bi-annual International Conferences for CFS. Join this organization to assist them in helping us increase  research funding and opportunities.

OFFER: the Organization for Fatigue and Fibromyalgia Education and  Research is a dynamic Salt Lake City organization created by Dr. Lucinda Bateman. This website offers many excellent videos, and electronic newsletter and more.

Put together by someone with CFS and MCS for 15 years the Environmental Illness Resource has just what its name implies, lots of resources including products for sale that may be helpful  for ME/CFS, MCS, fibromyalgia and other diseases.

P.A.N.D.O.R.A. this Miami advocacy founded by Marly Silverman  has quickly become one of the most active advocacy groups in the U.S. Among others it sponsored the highly successful 2007 P.A.N.D.O.R.A./IACFS Patient Conference (click here and here). For a Phoenix Rising interview with it’s founder click here.

The New Jersey CFIDS Association sponsors conferences, has regular speakers, a doctor referral list, and information on how to diagnose and treat CFS. The originator of the Consensus CFS Treatment Manual now being used in other states, the NJCFA is hands down the most effective state CFS advocacy group in the United States.

There is no more important issue for CFS patients than research funding. Craig Maupin of the CFIDS Report  helps explain why the major medical research institutions in the U.S. have failed CFS patients so miserably.

The M.E. Society of America is an informative website focused on myalgic encephalomyelitis

The Rocky Mountain CFIDS/FMS Association boasts an online newsletter, basic information on ME/CFS and, if you’re near Denver and an active seminar series.

The Wisconsin Chronic Fatigue Syndrome Association is one of the oldest extant CFS support groups. It offers a quarterly newsletter, discussion forum, phone support and more. Read an interview with WCFSA President Pat Fero.

The Northern Nevada  FM/CFS Network  provides information on CFS and related disorders to Norther Nevada residents

The Dallas Fort Worth CFIDS site is the central hub for information on Dr. Cheney.

CPN.HELP charts provides support for CFS, MS and other patients who have Chlamydiae Pneumoniae infection. Diana’s story on the Phoenix Rising website charts how one longtime  CFS patient with CPN infection completely recovered. Lots of information put together in an attractive way.

United Kingdom and European ME/CFS Sites

MERUK (Myalgic Encephalitis Research United Kingdom) offers patient friendly synopses of recent research by this research group and others. What a boon it is when researchers take the time to explain difficult medical issues to patients. The researchers associated with MERGE are engaged in some of the most interesting research being done on CFS right now.

Get M.E. information at the ME ActionUK

Association for Young People with ME (AYME) is a very attractive UK site for young people

The Overton Studio’s Trust, established by Dr. Michael Midgley is UK Christian Charity focusing on the power of therapeutic thinking (peaceful, loving, caring) to increase ME/CFS patients well-being.

Irish ME Trust - a excellent Irish resource for ME/CFS. On the web since 1989.

CFSResearch: Explore a large collection of research articles on Chronic Fatigue Syndrome, Fibromyalgia and related disorder from a variety of medical journals.

ESME - is an European organization of ME/CFS professionals that is designed to provide a ‘think-tank’ for issues pertaining to ME/CFS

Canada

FM-CFS Canada leads a national coalition of nearly 100 FM/CFS support groups. It’s bi-lingual website contains an enormous amount of information including complete support group lists, economic analyses, research information, a media center,  a National Action Plan, a legal center, question and answer pages, patient stories and more!

The Canadian websites are a great resource for information on the Myalgic Encephalopmyelitis (M.E)./Chronic Fatigue Syndrome debate. Dr. Byron Hyde, a Canadian physician has been involved in M.E. treatment/advocacy for many years. Check out hisNightingale Research Foundation site and the National ME/FM Action Network with its legal and medical research packages and the Ontario Myalgic Encephalomyelitis group.

Australia

The top Aussie website ME/CFS (SA) has excellent patient friendly papers and lots of links to other sites.

The Canberra Fibromyalgia and Chronic Fatigue Syndrome Pages is a beautifully put together site with lots of information, particularly on the Australian research scene, plus some really good stories.

MEsite - The Danes have put together a professional, frequently updated site.

Other Places 

ME India - the first Indian ME/CFS website boasts beautiful graphics

ME Malta - a very nicely put together regularly updated site from Malta

There are some excellent Lyme disease sites. They include the Lyme Disease Association, the California Lyme Disease Association, International Lyme and Associated Diseases Society and the Lyme Disease Network.

Read about one person’s success (yes, success) story in Chronic Fatigue Syndrome ‘A Success Story’. Vitamin D was critical to Frank’s success. He lays it out in a detailed and responsible fashion. A fascinating story.

If you, like many other CFS patients have stomach problems or irritable bowel syndrome, be sure to check out a very informative (and quite striking looking) site with regular updates called Irritable Bowel Syndrome and Treatment.

Check out Angelfire, an excellent MCS site with much information and many links for those with this problem.

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