pixabay clocks

ME/CFS and Beating the Clock

For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room …  I have two clocks in my living room. One clock is on the wall across from where I usually sit at my computer. The

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pixabay alice wonderland 2

ME/CFS: In Free Fall Through the Looking Glass

Jody Smith continues to try to put into words the horror of the altered state that hobbles the brains of those with ME/CFS …  If you’re not a fan of hallucinatory drugs you’re gonna hate ME/CFS. When I first became ill in March of 1992, the feeling of altered reality inside my head, the shaking which could not be seen

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pixabay question mark

No Longer Naive in the Ways of The Beast

After having lived for years with ME/CFS, Jody Smith learned there’s more to this beast of an illness than she realized, and that what might help one person may not help others … When I first got back online five years ago, I was naive in the ways of this beast we call ME/CFS. I guess I thought that whatever it

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pixabay clock

Time Change Equals Jet Lag, ME/CFS Style

Jody Smith marvels at how much difference one hour can make to those with ME/CFS, as much of the world has endured The Time Change in recent weeks …  Where I live, we recently went through a time change, compliments of Daylight Savings Time. Having ME/CFS, I don’t need to travel anywhere to get jet lag. I just need the clock

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Life on a Dead-End Street

Jody Smith considers how her life had become one of necessary isolation, and how a chance encounter with new neighbours and the possibility of having them in her home, led to feelings of fear and insecurity. Looking back she reflects on how these concerns have slowly improved and how the occasional visitor is now more welcome… I live in a cul-de-sac

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pixabay christmas boy window

The Holiday Season vs. ME/CFS

By Jody Smith In North America, the end of November traditionally kicks off the holiday season which runs till the beginning of January. “Holiday season” may seem to be at best an ironic term, at worst a bad joke, for describing this most taxing of time periods, especially for people who are chronically ill, and often poor and isolated as

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pixabay soliloquy

Writing as Therapy: My ME/CFS Story

Jody Smith reflects on how vital she has found the slow return of her writing ability – how it has helped with the expression of feelings and experiences, contributed to reestablishing a sense of self, and has proved such an important and productive means of social interaction… In my life before ME/CFS, I did a lot of writing. I kept

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