Posted by Cort Johnson Opportunity Knocks! The Chase Giving Contest is back and with it the opportunity to get cash-starved ME/CFS non-profits some real cash. All it takes is your vote and spreading the word for the next two weeks (Sept 6-19th). This, in the world of non-profits is a remarkably easy (if nerve-wracking) way to make money… Over the past
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Posted by Cort Johnson If you’re not sure how to vote on Chase or if you don’t want to use the exchange please check out the blog coming just after this one…(This blog is out of order purposefully so we could link to it from the next one).. This blog explains Bonus Voting and sets up a Exchange we can
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Posted by Cort Johnson The Chase Community Giving Contest for non-profits will run from Sept 6th-19th. In the past two years Phoenix Rising has poured time and resources into helping other ME/CFS orgs win over $170,000 and now, for the first time, we’re in ‘the chase’ (:)) and we’re excited to be there. The annual Chase contest provides a
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Posted by Cort Johnson PHANU is rising…. Lead by Dr.Sonya Marshall-Gradisnuk and Dr. Donald Staines, the PHANU ME/CFS Australian research team presented more studies at the 2011 Ottawa IACFS/ME conference than any other, scored a major grant from the Mason Foundation, established close ties with Dr. Peterson at the Simmaron Foundation and is moving to a larger laboratory at Griffith University.
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Posted by Cort Johnson The IACFS/ME Newsletter was chock full of good news this time… For starters, Stanford, of all places is co-sponsoring the next IACFS/ME Conference! Stanford University to Co-sponsor IACFS/ME Conference in March, 2014 Patient groups groups have always co- hosted IACFS/ME conferences in the past but that’s changed – and in a big way. One might
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Posted by Cort Johnson Looking Up Down Under – the PHANU Story ME/CFS research around the world is pretty spotty. The US and the UK are long-time hubs, with Canada coming on in the last few years. Outside of the Nijs/DeMeirleir work in the Netherlands/Belgium, you can scratch out most of Europe. South of the equator, the picture is bleak
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Posted by Cort Johnson A Health Service provider may want you (gasp)! Yes, it’s true. After all the cold shoulders and denials of coverage, etc. a health services system in the Southeastern United States (to remain unnamed) wants to determine whether it makes sense for them to open an neuroendocrineimmune center focusing on ME/CFS, fibromyalgia, lyme disease, etc. To
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Posted by Cort Johnson Bob and Courtney Miller’s effort to engage President Obama on behalf of Chronic Fatigue Syndrome patients began in a Town Hall meeting in Reno last year. At that meeting President Obama promised to look into the situation and report back and, now, through his Deputy Chief of Staff, Nancy-Ann DeParle, he has. The top aid to
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Posted by Cort Johnson An intriguing Fibromyalgia treatment appears, in its preliminary stages, to be working. A powdered form of Ketiotifen (which is not available yet in the US) may be turning down the activity of important immune cells called mast cells that recent research suggests could be contributing to the pain and fatigue in fibromyalgia (FM) and perhaps even
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Posted by Cort Johnson A strong and forceful personality who vowed to ‘be the last man standing’ in ME/CFS, Dr. William Reeves died at the age of 69 on August 2nd. The head of the most prominent chronic fatigue syndrome effort in the world for over ten years, no one made a bigger difference in how this disorder is viewed
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Posted by Cort Johnson Moving quickly, Ampligen’s producer, Hemispherx Biopharma, filed its ‘complete response’ to the FDA’s request for data just 53 days after the agency agreed to relax its requirements for review of the drug. Hemispherx’s ‘complete response’ means we will know by the end of January and perhaps sooner whether Ampligen becomes the first FDA approved drug for
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Posted by Cort Johnson The publication of the IACFS/ME Treatment Primer “Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Primer for Clinical Practitioners” is a landmark event. In this article we’re going to compare, section by section, the two documents. The CFIDS Association has created some good doctor education courses in the past but only the IACFS/ME – the organization of ME/CFS professionals
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