Posted by Cort Johnson The Coalition4ME/CFS – a coalition of US ME/CFS non-profit organizations – has issued a Call to Action on the impending DSM-5 proposal and provided information to assist organizations and patients in writing their own letter to the American Psychiatric Association. The submission period ends June 15th. THE COALITION ANNOUNCEMENT DSM-5 Background: Why this call to action
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WPI Says No to Retraction / Levy Study Dashes Hopes /NCI Shuts the Door on XMR
Posted by Cort Johnson WPI Response – Dr. Mikovits reponse to the request for retraction started off with a blast -at none other than the editor in chief of the most influential science journal in the world over what appeared to be a relatively minor issue – a day or so breach in a papers embargo – which she called
ContinueLevy Culture Study Finds No XMRV in CFS/ Science Publishes "Expression of Concern"
Posted by Cort Johnson New Article https://www.sciencemag.org/content/early/2011/05/31/science.1208542.full.pdf In the Expression of Concern chief editor of the Science Journal stated that two new articles appearing in their journal ‘strongly support the growing view that the association between XMRV and CFS……likely reflects the contamination and research reagents with the virus” One of the papers will provide evidence suggesting that XMRV is derived
ContinueWhat Science Giveth Science Try to Taketh Away: Science Journal Asks WPI To Retract XMRV CFS Paper
Posted by Cort Johnson One of the most stunning things about the Lombardi et. al XMRV paper on CFS was where it ended up – in Science – the most influential science journal in the world. The fact that the paper landed in such a prestigious journal seemed by itself to confer ‘rightness’; that even though it was a first
ContinueWin money for ME/CFS Research II: The 1.25 million Vivint Facebook Contest
Posted by Cort Johnson Discuss this article on the forums The Vivint Facebook Contest gives us another opportunity to win our research starved field some money. Vivint is spreading $1,250,000 around US and Canadian non-profits this summer. The WPI entered the contest late but has a great chance of winning a substantial amount of money. Key Facts Facebook contest Two
ContinueOne Last Chance For Chase!
Posted by Cort Johnson Discuss this article on the forums The Chase Community Giving Contest is almost like a pot that never stops giving. Round II of the Chase Contest is over but believe it or not there is still one opportunity left and still plenty of money left in Chase’s pot. Chase is now looking for a worthy cause
ContinueME/CFS Protest Sparks Media Coverage
Posted by Cort Johnson Discuss this article on the forums Rivka has helped to organize protests in Atlanta and Washington DC and now here she and others did so in San Francisco. This protest in front of a DHHS building triggered an article in the San Francisco Chronicle titled ‘Chronic fatigue patients protest lack of funding’ . Dr. Montoya was
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XMRV Buzz: WPI Finally Gets Its XMRV Grant? / Dr. Mikovits in Belfast / Dr. Bell in Mass (5/26)
Posted by Cort Johnson In the year and a half since the WPI’s Science XMRV paper they have received no grants from the federal government to study XMRV, despite several attempts to procure funding. A Gulf War news site (91Outcomes.com) reported back in March that the Congressionally Directed Medical Research Program (CDMRP) recommended funding 12 new studies, two of which were on XMRV
ContinueChasing Research Dollars – LAST CHANCE for WPI In the Chase Contest
Posted by Cort Johnson Discuss this article on the forums This is the last day of the Chase contest and the WPI has slipped out of the top ten. Don’t give up hope! The swings in the last two days can be huge and a similar thing happened to PANDORA last year and in the last hours they rebounded. The
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Allies in the Fight: The Gulf War Illness/ME/CFS Connection
Posted by Cort Johnson Gulf War Illness (GWI) and chronic fatigue syndrome (ME/CFS) have both struggled for recognition. Recent findings implicating similar findings in both disorders suggest each disorder could soon be helping the other gain more recognition and study. Throw in a recent rare advocacy win for ME/CFS supporting collaboration between the two fields and hope rises that not
ContinueResearch1st: the CFIDS Association’s CFS Research Info Site
Posted by Cort Johnson Discuss this article on the forums The CFIDS Association of America has opened a new ME/CFS Research Information Center….whoops it’s actually still a “CFS” (c’mon you guys! :)) site called Research1st that will be a ‘one-stop shop’ for information on the latest research news. Let’s take a look at it. Research Initiatives – The Current Research
ContinueAllies – Annette Whittemore Endorses CFIDS Association and Two Other Organizations In Chase…
Posted by Cort Johnson Annette Whittemore, the Founder of the WPI, and the mother of a daughter of ME/CFS, appealed to all people with ME/CFS to vote for the CFIDS Association of America in the Chase Community Giving Contest and has requested that they also vote for two other organizations – and ask that they vote for us. This is
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