Discuss this article on the forums Written by Kelvin Lord I overdid it this past weekend, and paid for it on Sunday. Nothing about this disease is predictable, except the unpredictability of it I guess, but I was feeling so good after Treatment #18 I actually got suckered into thinking I was “normal” last week. Big mistake. Talk about a
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My Allergic Cascade (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I never heard the phrase “allergic cascade” until 10 days ago, when I woke up with a nose so swollen with mucous that I literally could not blow it out. Seeing my distorted face in the bathroom mirror, all I could think of was that classic scene in the movie
ContinueMy Ampligen – Double Dose, Double Redundancy (Ampligen Chronicles #5)
Discuss this article on the forums Written by Kelvin Lord Treatment #5 Today’s infusion took longer than any prior, because they doubled my dose. As promised, my Ampligen quantity was upped from 200ml to 400ml, which veterans tell me is the “full dose.” So as not to stress or shock the body with the increased chemical or the quantity of
Continue7 Absurd Things I Do to Make Life Manageable (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord “I am thankful for laughter, except when milk comes out of my nose.” Woody Allen It was Christmas time and the jazz band on the corner was playing the requisite boring Jingle Bells music. I just completed my 17th treatment yesterday, and things are going well. So much so as
ContinueHow Not to Become Invisible
Discuss this article on the forums Written by Kelvin Lord It was worse than just being ignored. The problem was this arrogant nurse was trying to make me feel invisible – As if I didn’t exist – And that I just couldn’t permit. It happened at the clinic. This nurse was a freelance RN hired exclusively by another patient to
ContinueCongratulations. You Feel Like Crap! (Ampligen Chronicles #8)
Discuss this article on the forums Written by Kelvin Lord Treatment # 8 Today is my first month’s anniversary with Ampligen, and my body celebrated by manifesting all the signs that it was working – feeling like I had the flu. I say that only half in jest, because my Doctor confirmed last night that, after seeing patients on this
ContinueAmpligen, Serotonin and Anhedonia (Ampligen Chronicles #9)
Discuss this article on the forums Written by Kelvin Lord Treatment #9 “Depression is melancholy minus its charms.” Susan Sontag This past weekend was rough. After having 8 treatments of Ampligen over the past 4 weeks go so smoothly, I wasn’t prepared for the surprise dark cloud that rolled over my horizon beginning Friday evening. Some would call it depression,
ContinueLearning to Fly Again (the Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I did it! The year on Ampligen is over, and I’m about to burst at the seams. Would you join me now in celebrating my victory? If you watched the NFL playoffs this past weekend you saw the New York Jets doing on the field what I have felt like
ContinueDr. Mikovits Talks! The XMRV Santa Rosa Lecture: Part II by Lannie
Posted by Cort Johnson Discuss this article on the forums PART 2: 1/17/11 XMRV presentation by Dr. Judy Mikovits and Annette Whittemore Thanks again to Lannie for allowing us to post her very thorough report on Dr. Mikovits lecture. Check out her blog and the original post here. [URL=”https://https://forums.aboutmecfs.org/content.php?321-Dr.-Mikovits-Annette-Whittemore-Santa-Rosa-XMRV-Talk-Jan-17th”]For Part 1 CLICK HERE[/URL] And now back to the story of
ContinueDr. Mikovits and Annette Whittemore Talk! The Santa Rosa Lecture: Part I by Lannie
Posted by Cort Johnson Discuss this article on the forums Thanks to Lannie for allowing us to publish her overview (complete with slide!) of the Jan 17th from talk by Dr. Mikovits and Annette Whittemore. (headings added) Find the original here PART 1: 1/17/11 XMRV presentation by Dr. Judy Mikovits and Annette Whittemore Today I attended “Chronic Fatigue Syndrome, the
ContinueLaura Hillenbrand On ME/CFS, Her Formerly Athletic Life and How She Gets By: the SI Interview
Posted by Cort Johnson Discuss this article on the forums The CFIDS Association highlighted these two stories on Laura Hillenbrandt in the CFIDSLink and they seemed particularly poignant to me since they focus on her former quite athletic life and her life as it is at present and how this formerly very athletic person deals with such a devastating case
ContinueNIH Steering Committee Wants Your Input!
Posted by Cort Johnson Discuss this article on the forums Written by Cort Mary requested this be posted. The Steering Committee is in charge of determining the subjects and reseachers presenting at the NIH State of the Knowledge Workshop in April. Hi everyone. I think by now you know about the NIH workshop in April to prime the pump for
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